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Well ladies, the prelim results are the final results. Joey has Langerhans Cell Histiocytosis. We are starting treatment tonight. If he responds and if we don't have to go to salvage treatment he should be home in a few weeks, on continued treatment. PRAISE GOD! I can not tell you how relieving this is.
However he is in 2 risk categories making him more likely to have to go to salvage treatment (he has a 20% chance of salvage treatment). The first being he is under age 2. the second being vital organ involvement (lungs, liver). But it is NOT in his bones! This is a PLUS for us.
So LCH is the final diagnosis, treatment starts tonight, and he will be on numerous meds but he will hopefully be home in just a few weeks.
Thank heaven! I am so glad the news seems to be promising (I don't even want to dare say "good" since I know any health issue isn't "good" news really). As always - keeping you & Joey in thoughts & prayers.
__________________ B - Crazy momma to my two boys
We've begun to raise daughters more like sons... but few have the courage to raise our sons more like our daughters. ~Gloria Steinem If a man has been his mother's undisputed darling he retains throughout life the triumphant feeling, the confidence in success, which not seldom brings actual success along with it. ~Sigmund Freud
My mom is a neverending song in my heart of comfort, happiness, and being. I may sometimes forget the words but I always remember the tune. ~Graycie Harmon Don't wait to make your son a great man - make him a great boy. ~Author Unknown
You don't raise heroes, you raise sons. And if you treat them like sons, they'll turn out to be heroes, even if it's just in your own eyes. ~Walter M. Schirra, Sr. A man loves his sweetheart the most, his wife the best, but his mother the longest. ~Irish Proverb
Mother's love is peace. It need not be acquired, it need not be deserved. ~Erich Fromm Children need love, especially when they do not deserve it. - Harold Hulbert
Mother is the name for God in the lips and hearts of little children. ~William Makepeace Thackeray God could not be everywhere, so he created mothers. ~Jewish Proverb
The best conversations with mothers always take place in silence, when only the heart speaks. ~Carrie Latet
So glad that they have officially diagnosed and are able to start treatments right away. Continued prayers for Joey and your whole family. ((((hugs))))
Married 8/11/90 ~ Terry Bechor m/c'd 11/26/03, Thomas A. III m/c'd 7/15/04,
Sarah E. born 6/24/05, Tabitha Zipporah m/c'd 4/?/06, Theodore David m/c'd 8/27/06,
Taylor Lynn m/c'd 2/07/07, Benjamin E. born 3/25/08, Catherine A. born 6/03/09