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Pre-transplant testing DONE


Forum: Recurrent Miscarriage and Pregnancy Loss

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  #1  
September 18th, 2010, 12:05 AM
docsmomma's Avatar Platinum Supermommy
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OK, so today was the last day of testing for Joey. In 3 weeks time he has had a Bone Marrow Aspirate (biopsy), EKG/ECHO, CT scan, chest x-ray, bone age, kidney test, brain MRI and full dental workup.

The Bone Marrow test was difficult and he had some pain after, for almost a week... but then it was difficult to get a sample because his marrow is pretty empty (or its involved... I prefer empty)

The EKG/ECHO was pretty simple and he was not fully sedated... jsut "happy" from meds.

The CT/Xray/Bone Age/Kidney test were all done in 1 day and he was kept sedated. That was the HARDEST for me because he was fully sedated and I watched them move him from gurney to table and back repeatedly on a sheet, while he looked so lifeless and had tubs and wires everywhere.

The MRI was today and while he was sedated, they only had to move him once, and carried him for that, the same way you carry any sleeping child. We also met with Social Work for the phsyco-social review thats mandatory.

After that we went to the dentist. It was a ped dentist I literally drew out of a hat because I wasn't sure where to go. But turned out the dentist is married to an oncologist so she knew more than most would and took special precautions for Joey's check. He has PERFECT teeth, which alone is a miracle with how much chemo and steroids he's been on.

testing is done. We get the results of everything on Tuesday and sign consents. Admission is currently set for the 27th.

To be honest, as terrified as I am... I can already see this disease ravaging him again. His scalp is fully involved again. Little lessions all over his precious head, and they bother him. We've had to start medicating him so he doesn't scratch his poor head up.

I ignore it as much as I can, because there is NOTHING we can do at this point, unless we want to delay transplant... which we CAN NOT do.

I did get a new pin at City of Hope today. Its an awareness pin... Histio blue... and says HOPE. What a perfect pin for this...

I feel like I am standing in a desert expecting to see waves crashing against the shore, or standing outside in day light looking for a falling star. Sounds impossible... but truly, I know there is nothing that is not possible. Joey wasn't supposed to be alive right now, according to the medical world. And he is.
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  #2  
September 18th, 2010, 07:15 AM
esparando para bebé's Avatar Proud Car Seat Technician
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So glad testing is done! Looking forward to good news Tuesday.
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Proud former foster parent to a teen. Waiting on our next call. Proud Aunt to 22.
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  #3  
September 18th, 2010, 09:34 AM
austinmommy3's Avatar Mega Super Mommy
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So happy testing is done, bless his little heart and yours!!
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  #4  
September 18th, 2010, 11:04 AM
ambee's Avatar Platinum Supermommy
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What a journey. Joey's lucky to have a Mom who is handling it with such strength and grace. I will continue to keep your whole family in my prayers and looking forward to hearing good news on Tuesday!
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  #5  
September 18th, 2010, 12:08 PM
Halloween81's Avatar Mega Super Mommy
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I am glad the testing is done. I will be thinking of you on Tuesday.
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Kimberly, wife to Jamie
Miscarriage at 10 weeks - February 14, 2009
Miscarriage of twin boys at 11 weeks - September 21, 2009
Chemical pregnancy - January 9, 2010
Miscarriage at 10 weeks - April 21, 2010
Miscarriage at 7 weeks - October 22, 2010
Miscarriage at 10 weeks - May 14, 2011
Miscarriage at 17 weeks - December 7, 2011 (My sweet little Joshua had Achondrogenesis type 2)
Miscarriage at 5 weeks - June 5, 2013

All test results normal. Reason for RPL unknown.

Annabel born healthy at 35 weeks - May 22, 2014
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  #6  
September 18th, 2010, 01:28 PM
MommytoaMiracle's Avatar Platinum Supermommy
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So glad the testing is out the way!
Prayers & thoughts, hun!
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