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Forum: Recurrent Miscarriage and Pregnancy Loss

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  #1  
January 31st, 2012, 02:49 PM
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Join Date: Jan 2012
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Hello! My husband and I had been trying to get pregnant for a while, in December of 2009 we found out we were! We were so excited. In January we went for our 10 week check-up; everything looked fine. We had an ultrasound to check for twins. That is when we discovered that our precious baby had stopped developing at 7 weeks. We were devestated. I had a D&C two days later.

We decided to try again that same year....we got pregnant in January of 2011. My Dr. had me come in at 5 1/2 wks for an ultrasound to see if there was a heartbeat. There was not. The Dr. wanted to repeat the ultrasound a week later.....our precious baby had stopped developing at 5 weeks this time. We were once again devestated. I had a D&C again and my Dr. started doing testing to see what was going on.

After blood tests, having dye run in my uterus, and many other tests, we found out that I have a rare blood disorder. It is called MTHFR and it causes my blood to be too thick and so it sent clots to the babies and caused them to stop developing. I have been told that with medication I can go on to have a healthy baby. However I am terrified to get pregnant again. But I am starting to have the desire to try again. Does anyone else have this blood disorder? If so, have you been able to have a healthy baby?

Thanks for listening! I miss my two babies everyday. We got headstones for both of them and had them placed near my family.
Baby Vaughn- 01/21/10
Baby Vaughn- 02/18/11

Never in my arms, forever in our hearts!
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  #2  
February 1st, 2012, 05:56 AM
plan4fate's Avatar I may bend, but not break
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*hugs* and welcome.

You'll actually find that a large portion of the girls on here have the MTHFR gene mutations.
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  #3  
February 1st, 2012, 09:12 AM
RinkMom's Avatar Super Hockey Mom
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I am so sorry for your losses. Welcome and big hugs to you.
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  #4  
February 1st, 2012, 12:06 PM
esparando para bebé's Avatar Proud Car Seat Technician
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A sad, but warm, welcome. I have MTHFR. I don't have my baby yet but also have a genetic issue. With MTHFR make sure you're taking b6, b12, and 4mg (that's 4000mcg) of Folic Acid. You'll also want a blood thinner during pregnancy.
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  #5  
February 3rd, 2012, 06:42 AM
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M,

I am so sorry for your losses. That must have been devastating. Did your doctor say if you were heterozygous or homozygous for the MTHFR polymorphism? What supplements did he put you on?
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  #6  
February 3rd, 2012, 09:42 PM
LisaB's Avatar Mom to twins + 1
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So sorry to hear about your losses. You're in good company, though.

I have heterozygous MTHFR, also slightly elevated IgG. My miscarriages (there were 4) were all early 1st trimester, after a heartbeat was found. My reproductive immunologist was a leading researcher (there aren't a lot of RIs around though so that's not saying much I guess), and in addition to the typical baby aspirin/extra folic acid/lovenox/dexamethasone/ivig therapies that most doctors recommend for people TTC with MTHFR, he convinced me to try something called lymphocyte immune therapy or LIT. It's not yet FDA approved, but most other countries are doing it with great results, so I went to the nearest one to have it done (Mexico). I have no idea how effective or not effective it was, but it was only $400 (which is cheap compared to all the other TTC expenses we were considering), so I went ahead. It's just a blood draw for your husband and a shot in the arm for you. No big deal at all. And, my next pregnancy was a great big success.

However, the lovenox made me bleed heavily in my first trimester, so I had to stop taking it. It was recommended that I do IVIg, but I didn't. It was expensive, and my clotting factors were borderline. Had they been higher, I would have gone ahead with it. So all I took for MTHFR was the LIT, baby aspirin, folic acid, dex. And prenatals.

So I can't be certain that the LIT worked, but... I got pregnant AGAIN, and I was off all that other stuff. Even the baby aspirin and supplements. I was breastfeeding, only had one cycle, and boom! Got pregnant, stayed pregnant. How unlikely is that?? I wasn't even trying. Since all the other meds were out of the picture, only LIT was left. It's permanent (supposed to treat any possible immune response your body might have against your fetus which has your husband's white cells).

Good luck in your future pregnancies, and many hugs!
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Me: Lisa, Mommy to twins +1
8/5/08 Beautiful twin girls Leigh and Lucy born after 4-year struggle with RPL & 6 losses
12/10/09 Surprise! Baby #3 is on the way, EDD 6/22/10

12/29/09 2nd ultrasound - joining team blue

6/16/10 Baby Ben is born!


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  #7  
February 4th, 2012, 02:38 PM
IneedCoffee's Avatar Platinum Supermommy
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I am sorry you have to be here, but welcome. I do not have MTHFR but have APS, another clotting issue. Best of luck to you on your journey.
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  #8  
February 6th, 2012, 05:03 PM
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My Dr. put me on 4 mg of folic acid, a baby asprin everyday, and vitamin supplements. She has not told me which one it was. I am also currently taking clomid to try to conceive. I have PCOS as well, so the second time we had to use clomid to get pregnant. I am just praying for everything to go well this time.
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  #9  
May 25th, 2012, 11:11 AM
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Location: Kissimmee, Fl
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I am very sorry for your losses. I hope things work out well for you.

Melissa
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