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Does anybody have experience with Edward syndrome?


Forum: Recurrent Miscarriage and Pregnancy Loss

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  #1  
July 16th, 2006, 09:34 PM
mmn1025
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Hello ladies,

Over the course of this second m/c i have been thinking a lot about my first one. My ob never really explained to me what trisomy 18 was or why is caused my m/c. All he told me was that my baby was a girl and that i lost her due to trisomy 18. I can't find anything on the internet that isn't written in medical speak. Does anybody know anything about this? Any help is welcomed.

Mandy
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  #2  
July 16th, 2006, 10:14 PM
Veteran
Join Date: Jun 2006
Posts: 371
Mandy,

I'm haven't had any personal experience with trisomy 18.. but there's a trisomy website that may have some info for you that makes a little bit more sense.
http://www.trisomy.org/

While looking through that, I found a Guidebook for Families explaining chromosomes, etc.. I think you have to buy it from the site, but it may be worth the peace of mind and understanding..
http://www.trisomy.org/html/t-18_guidebook.htm

You may also want to check out wikpedia.. I find that I can usually understand most of what they say on their site.
http://en.wikipedia.org/wiki/Trisomy_18

I hope that helps, even a little.. I wish there was more I had to offer.. And I hope you're able to find the answers and peace of mind you're looking for. Please feel free to PM me or post a reply if there's anything I can do..

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  #3  
July 16th, 2006, 10:37 PM
beck12's Avatar Platinum Supermommy
Join Date: Jul 2005
Location: Michigan
Posts: 12,330
Wow Nicole, that is some good info....

Mandy - there is some reference to Trisomy 18 in the new sticky - regarding it being one of the most common causes in single time mc I believe. I thought it put that in there anyway. (I will have to check, I was trying to compile info & may have missed something) There are several types of trisomy that account for 70% of single time mc's.

I am sure other ladies know more about than I do here, as some have had personal experience with trisomy. I wasn't able to find any better info than Nicole did, but you can always ask your Dr to refer to a geneticist as well to discuss all of your concerns. Most Ob's will refer you after a 2nd loss.

I hope you find the answers you seek. ((hugs))
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  #4  
July 17th, 2006, 02:20 PM
4iris's Avatar Platinum Supermommy
Join Date: May 2006
Location: Midwest
Posts: 10,732
I found several good sites when I was looking for info on Trisomy 16 (definite cause of loss #2, probable cause of loss #1). I'll see what I can find and edit this post as I find them.

http://journals.aol.com/patoco2/Tris...rs/entries/896

Government genetics page:
http://ghr.nlm.nih.gov/condition=trisomy18...D567AEA4CFD433B

On the trisomy 18 foundation site (pregnancy after trisomy 18 page):
http://www.trisomy18.org/site/PageServer?p...me=parents_spal

This one looks really good - support for trisomy families:
http://www.trisomyonline.org/
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  #5  
July 17th, 2006, 11:19 PM
mmn1025
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Wow!! Thank you ladies for your kind words and useful information. I have bookmarked all the sites.

Mandy
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