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Test Results - Help Interpret PLEASE!!!!


Forum: Recurrent Miscarriage and Pregnancy Loss

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  #1  
August 8th, 2006, 09:36 AM
EricaInOhio's Avatar Veteran
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I made the mistake of talking to a nurse at the Doc. office about my test results and she told me I had an elevated anticardiolipin. I'm actually a research scientist so I can look up the science stuff about what this means, but I want to from a patient standpoint where do you go from here? Has anyone had this diagnoisis? It is a bloodclotting disorder that can cause blood clots in the vessels feeding the fetus resulting in m/c. It is common in women with systemic Lupus, but can occur in people without Lupus. I'm freaking out because my little sister battled Lupus last year, but it was drug induced Lupus not systemic Lupus (the inherited kind) and once she was removed from the medication that was causing it she recovered fully.

So my problem is that the nurse never should have said anything since she couldn't interpret the results. Now I have a result, but don't know what it means except what I can find online, which is scaring me to death. If you know anything about this please help me.
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  #2  
August 8th, 2006, 09:56 AM
4iris's Avatar Platinum Supermommy
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There are several ladies on this board who have dealt with blood clotting disorders, but they're usually not on until later in the day. From what I remember them saying, it may be as simple as taking a baby aspirin every day or some other daily medication to prevent the clotting. You'll definitely want to talk to the doc if you're planning to get pg again in the near future. Some of the meds have to be started before you get pg.

I hope this helps at least a tiny bit. Hopefully you'll get better answers from the ladies with similar diagnosis, but I didn't want you to sit forever wondering why no one had responded. Try to relax (I know that's next to impossible) and call back to the doc's office to request a call from the doc explaining go-forward treatment.
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  #3  
August 8th, 2006, 10:23 AM
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Thanks. I would have been sitting here thinking I'm the only one with this test result (I guess it isn't a diagnosis yet). I hope to hear from the other ladies soon. I expect that once the doctor calls I'll have some more blood work done to verify the result and then probably have to see a specialist.
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  #4  
August 8th, 2006, 12:00 PM
beck12's Avatar Platinum Supermommy
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There is a little info in the sticky at the top of the page about causes & that is in there, but based on your research - it probably doesn't tell you anything you don't already know. I believe (and may be wrong) that when treating blood clotting disorders one of the most common/effective treatments is heparin injections. I am not sure which blood clotting disorders do/don't use heparin...wish I could be more help there. There is also a gal FerrariAngel that has lupus and could tell you more about that aspect of what they do during pg. You are right that the nurse shouldn't have told you without having any answers about what that even means. I know it is difficult to relax...but try to remember that having had one healhty daughter, you have excellent chances of anything they do find being treatable. It does improve your odds of being able to have another healthy pg. I know tests result can be scary - but remember - they are tests, and often need to be repeateded for verification anyway. So in the meantime - try not to obsess (as if any of us are capable of not obsessing ) and let's hope maybe some others have even more info to share. (((hugs)))
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  #5  
August 8th, 2006, 05:19 PM
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After my second loss, my dr recommended that I take a baby asprin every day JUST IN CASE I had some sort of blood clotting disorder. I've also heard of women getting heparin injections.

I'm sorry that I can't be more helpful.
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  #6  
August 8th, 2006, 07:54 PM
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I'm one of the ladies with a possible blood clotting diagnosis (and yes, on the board much later in the day ), but unfortunately mine is still awaiting results from the verification test I had last week, so I don't know much more than you do at this point. My initial bloodwork came back with an elevated protein, but I don't know which one. I think it did start with an "a", so it may very well have been the same thing.
What I've been told so far:
1. Take an aspirin if you become pg. I've actually been taking one daily anyway because DH and I are not preventing pg at all, but my doctor actually said not to take it before pg, but I've read other places that it's okay to take it, and frankly it makes me worry less to take it, so I do.
2. Many women also need to take heparin shots (I think maybe as much as twice daily, but I'm not totally sure) while pg, along with the aspirin. There's also another drug that is sometimes prescribed, but I don't remember the name of that one either (I think I was in shock when the nurse called me with the news, and I was at work, so unfortunately I didn't write any of this down or remember it very well).

My doctor sent me to a different lab to get blood taken again for verification. I'm not sure if that is common practice or not, but I guess it is a big enough deal that they don't want to be wrong. I honestly don't know what th prognosis is for women in our situation, only that without treatment it's pretty bad, and with treatment the odds get better.

Good luck to you, and please PM me or post if you find out anything more.

Sara

Edited to Add: One more thing I forgot that's very important. The nurse told me that increased levels of estrogen cause the clotting (I guess that's why we're okay when not pg), so if my diagnosis comes back confirmed I should not take anything with estogen in it like birth control pills or hormone therapy because of the increased risk of blood clots.
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  #7  
August 9th, 2006, 06:59 PM
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Thanks Sara. We'll have to keep eachother posted as we sort through this mess we've found ourselves in. I hope to talk to my doctor soon about the results. She was out of the office today so maybe tomorrow. I expect that I will have to have another antibody screen to verify the result and then possibly on to some specialists like a high risk OB and a hemotologist. Anyway, I'll update when I know something and I hope you will do the same. Good luck!
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  #8  
August 10th, 2006, 04:54 PM
srs srs is offline
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Well, I have an update, and not the one I was expecting. My doctor called yesterday to say that my second levels came back normal, and they think I'm okay. I think I'm going to keep taking the aspirin, because I don't think it will hurt and I was already taking it when I got the second blood sample drawn, so for all I know the aspirin had something to do with the normal result (I probably should have waited to start taking it until after the second test, but I was such a nervous wreck that I felt like I had to do something).
Anyhow, good luck to you. maybe you will have a similar experience with the verification.
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  #9  
August 10th, 2006, 05:36 PM
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That's great news. I think I mentioned before that I do scientific research for my graduate training, therefore I have access to all the medical journals. I've been scanning them for anticardiolipin and antiphospholipid sydromes and m/c's and with those specifically I did see it mentioned that levels fluctuate up and down for no obvious reason. I can't say if that is the case for your specific test, but it might be worth asking just to be sure.

For anyone else that might come across this thread in the future I did find out this information. One of the moms in my dd's playgroup has 2 abnormalities in her blood that can cause clotting. She took a single shot daily up until 35 weeks then they switched her to heparin twice a day. They switch at the end because it doesn't stay in your blood as long so if you start to go into labor they hope it will be out of your system before the baby comes. Also, they schedule the delivery so it is a more controlled situation where everyone knows what is going on. She has a C-section, but I haven't had a chance yet to find out if that was her choice. I can read 100's of articles about the success of using heparin during pregnancy, but knowing someone who has been there and has a healthy baby makes all the difference.
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