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Forum: Recurrent Miscarriage and Pregnancy Loss

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  #1  
August 24th, 2006, 03:19 PM
Mari13007's Avatar Mega Super Mommy
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Sorry I haven't posted on here much, life seems very hectic recently, which on a brighter note has taken my mind off of ttc. I saw a genetic counselor yesterday with DH since my ob recommended me too. She was a very nice person and said that we should definitely ttc again, but that I should be aware that the chance (percentage) that I will m/c again will always be the same. As far as being positive for two copies of mthfr, she said not to worry, that two out of ten people are positive for both copies. She recommended more folic acid with supplements of B6 and B12 in conjunction with the prenatals. What she was not clear about though was about my test results for protein s activity. It came back low (56 with a normal range being between 60 - 140). She said that I would probably not need neparin or lovenox but was not completely sure and recommended that I be tested again once I was 8 weeks pg. Does anyone have more information on these drugs, the gentic counselor mentioned that they were injectable. She recommended that DH and I be tested to make sure we don't have more chromosomes than normal, so unfortunately I have more blood work to go through. I'm so tired of giving blood and I'm still waiting for some more clear answers which I'll probably never get. I can't wait to ttc again but at the same time I'm very scared. Sorry so long, thanks for listening.
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  #2  
August 24th, 2006, 03:48 PM
4iris's Avatar Platinum Supermommy
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They're both for blood clotting issues (just google Heparin or Lovenox).

As for everything else, it sounds like you're at least getting some answers and making some progress. TTC after several losses is very scary. When you're ready, there's a subforum to this board for discussion about it.
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  #3  
August 24th, 2006, 04:53 PM
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Sorry I don't have any direct experience with either of the drugs you're asking about, but I can give you direct links to info on each of them.. I always go to rxlist.com with my medication questions because it's the most indepth site I've found.. So here they are:
Heparin and Lovenox.

I hope those help ease your mind, even a little.. I know it's hard to not have answers, sweetie, and I know that it's hard thinking that you may never have answers.. But try to remain hopeful and know that even if you don't get an answer persay, it doesn't mean you can't concieve.. I know it's scary, but I have faith that everything will work out for you.. We're here for you sweetie.. Please keep us posted..
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  #4  
August 24th, 2006, 06:50 PM
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I just wanted to let you know that I put some info in the sticky a while back about blood clotting disorders. My results came back that I had a borderline value for an antibody that can cause blood clotting (anticardiolipin) and a single copy of the MTHFR mutation. The good news about the MTHFR is that they can determine if your enzyme is functioning properly in spite of the mutation by checking your homocystene (HC) levels. If your HC levels come back high they will put you a higher dose of these vitamins you mentions and it is VERY successful at treating this problem. They do not usually treat MTHFR deficiency with blood thinners (other than a baby aspirin) because once the HC level is normal there isn't much worry about blood clots. So although this is all very overwhelming right now, it is a VERY treatable problem. There are women in the high risk pregnancy board that are on the blood thinners (I'll try to find the thread and link it here) and I have a friend that was on them all through her pregnancy. She says it wasn't as bad as it sounds. It's a shot once a day until 35 weeks, then they switch to a shorter acting medication that you have to inject every 12 hours. They aren’t so bad that you’ll bleed to death from a paper cut or anything. Anyway, I doubt you will need it. There is a lab test you can ask for that tests the speed at which your blood clots to determine if you might have a clotting disorder. I've read a lot about blood clotting disorders and the MTHFR mutation. I will try to answer any other questions that you might have. I hope you have answers soon!!! (and you thought your was long)
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  #5  
August 24th, 2006, 07:02 PM
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Good luck. I had one clotting test come back abnormal and the second verification test come back normal, so I would definitely get the second test done. It's tough to have to worry about, and I hope everything turns out okay for you.
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  #6  
August 24th, 2006, 07:48 PM
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I'm sorry you didn't get hte absolute answers you were hoping for - but it is good you got soem answers. Maybe after your next tests coem back you will feel a little more clear on everything. It is frustrating to do all the poking & waiting. Unfortunately there is no other way to get the answers we all so desperately want. Hang in there hun - I am sure they will be able to tell you more soon! As for the TTC as Kathryn said - you can also always talk about all your feelings about that in the subforum...even if you aren't actively TTC - you can still talk about al of your feelings about it etc....I wish you all the best.
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  #7  
August 25th, 2006, 10:17 AM
Mari13007's Avatar Mega Super Mommy
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Thank you all for your kind words and information. I'm going in today for my third round of blood work and hopefully I'll get a call from my dr with my hc levels which I was tested for last week. Keeping my fingers crossed that it will be normal xxxxx. I'll keep you all posted. Marilyn
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  #8  
August 25th, 2006, 11:03 PM
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I have two copies of the MTHFR and have had two healthy pg's. I just took extra folic acid with supplements of B6 and B12 (all prescribed by my perinatologist) and had no problems. I'm glad you are getting answers and I'm sure it will be no time at all before you have your baby.
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