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  #1  
November 30th, 2011, 07:45 PM
Halloween81's Avatar Mega Super Mommy
Join Date: Oct 2008
Location: Alberta, Canada
Posts: 1,236
Today I had another u/s and it showed that the baby has skeletal dysplasia. The arms and legs are extremely small (less than the first percentile), there is something wrong with the spine, and the fluid around the baby is still present (cystic hygroma and edema around the torso). The baby has always had a very low chance of survival and the u/s today has once again confirmed this. The Dr told us the baby most likely has a lethal form of skeletal dysplasia. She believes that as it grows, the baby's rib cage will be too small and the lungs will not develope; at this time, the doctor thinks that the fluid around the baby is being caused by the rib cage constricting and preventing the fluid from going back into the abdomen.

DH and I have made the hardest decision anyone in our position would have to make and have decided to terminate the pregnancy. Next week we will go to the hospital and I will be induced (I am not comfortable with the idea of a D&E and would prefer to deliver him naturally). They will do an autopsy and send all the information to a specialist in the US to diagnose the type of skeletal dysplasia the baby has. These results should take 3-4 months. Futher genetic testing will also be done. At this time the Dr doesn't know if the same thing caused the other pregnancies to fail or not but they will do everything they can to figure it out.

Once again I thank you all for your support. It means a lot to me. By the way, I asked the dr what the sex was when they did the karyotype - another boy.
__________________
Kimberly, wife to Jamie
Miscarriage at 10 weeks - February 14, 2009
Miscarriage of twin boys at 11 weeks - September 21, 2009
Chemical pregnancy - January 9, 2010
Miscarriage at 10 weeks - April 21, 2010
Miscarriage at 7 weeks - October 22, 2010
Miscarriage at 10 weeks - May 14, 2011
Miscarriage at 17 weeks - December 7, 2011 (My sweet little Joshua had Achondrogenesis type 2)
Miscarriage at 5 weeks - June 5, 2013

All test results normal. Reason for RPL unknown.

Annabel born healthy at 35 weeks - May 22, 2014
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  #2  
November 30th, 2011, 10:10 PM
Mega Super Mommy
Join Date: Mar 2010
Location: Illinois
Posts: 1,556
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  #3  
December 1st, 2011, 02:10 PM
esparando para bebé's Avatar Proud Car Seat Technician
Join Date: Apr 2008
Posts: 19,613
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I'm so sorry sweetie.
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Thanks to Jaidynsmum for my siggy!
Proud former foster parent to a teen. Waiting on our next call. Proud Aunt to 22.
Proud mommy to 7 angels. Survivor of 4 failed adoptions (5 kids)
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  #4  
December 1st, 2011, 02:16 PM
Lex&angels's Avatar Mega Super Mommy
Join Date: Nov 2009
Location: France
Posts: 3,736
I am so sorry :'( I don't even know what to say.
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  #5  
December 1st, 2011, 03:05 PM
plan4fate's Avatar I may bend, but not break
Join Date: Mar 2008
Location: Wisconsin
Posts: 26,469
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Oh Kimberly I'm so sorry. I wish I could reach out and give you a real hug. TFMR (termination for medical reasons) is one of the HARDEST decisions a person can ever make.

There IS a board for this, it's a subforum of the Stillbirth forum. If you want to get the password just mail their host Jennifer (Ben,Logan&Kaitlin'sMommy) and tell her I sent you over, she's my bestfriend, she'll get you the password. There are several girls on that specific board who chose to terminate when they received the awful news of either no survival or very low quality of life.

it is a very very quiet board, I'm not sure many on JM know it exists to be honest...
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~TTC #1 together 2 years and counting ~


Awesome siggy made by Jaidynsmum

Me: Hashi's, PCOS, Insulin resistant, Multiple miscarriages
175mcg Synthyroid, 1500mg Metformin
Colposcopy = CIN1+CIN2 cells Polypectomy - August 21st
Him: MFI low count, low morphology, low motillity
Seeing MFI specialist/RE in 2015. Vitamins started August 2nd
Trying a few cycles of clomid and progesterone. FX this is all it takes.
Cycle 1: Clomid cd3-7 ~ bfn
Cycle 2: Clomid cd 3-7
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  #6  
December 2nd, 2011, 06:47 AM
geogeek's Avatar Marsi's Mommy
Join Date: May 2009
Location: In yonder mountains
Posts: 9,339
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Thank you *kiliki* for my beautiful siggy!

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  #7  
December 2nd, 2011, 09:01 AM
Halloween81's Avatar Mega Super Mommy
Join Date: Oct 2008
Location: Alberta, Canada
Posts: 1,236
Thank you everyone. This was a really tough decision but one that I have been thinking about since we found out there was something wrong with the baby back in october. At that time they didn't know what was wrong, they just knew that there was a lot of lymphatic fluid built up. Now that they know what's wrong and know that it's a severe condition I am comfortable making this decision and I know that for me it is the right one. I have an appointment at the Women's Hospital next Wednesday and will be released next Thursday afternoon. This baby has been a blessing and it will be very hard to let him go.
__________________
Kimberly, wife to Jamie
Miscarriage at 10 weeks - February 14, 2009
Miscarriage of twin boys at 11 weeks - September 21, 2009
Chemical pregnancy - January 9, 2010
Miscarriage at 10 weeks - April 21, 2010
Miscarriage at 7 weeks - October 22, 2010
Miscarriage at 10 weeks - May 14, 2011
Miscarriage at 17 weeks - December 7, 2011 (My sweet little Joshua had Achondrogenesis type 2)
Miscarriage at 5 weeks - June 5, 2013

All test results normal. Reason for RPL unknown.

Annabel born healthy at 35 weeks - May 22, 2014
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  #8  
December 2nd, 2011, 09:09 AM
plan4fate's Avatar I may bend, but not break
Join Date: Mar 2008
Location: Wisconsin
Posts: 26,469
Send a message via MSN to plan4fate
*HUGS* *HUGS* *HUGS*

I will be thinking and praying for you until I see another update. I'm very glad your husband is right there with you and on the same page, will make this all a tad easier on you in the long run!
__________________
~TTC #1 together 2 years and counting ~


Awesome siggy made by Jaidynsmum

Me: Hashi's, PCOS, Insulin resistant, Multiple miscarriages
175mcg Synthyroid, 1500mg Metformin
Colposcopy = CIN1+CIN2 cells Polypectomy - August 21st
Him: MFI low count, low morphology, low motillity
Seeing MFI specialist/RE in 2015. Vitamins started August 2nd
Trying a few cycles of clomid and progesterone. FX this is all it takes.
Cycle 1: Clomid cd3-7 ~ bfn
Cycle 2: Clomid cd 3-7
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