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  #1  
August 14th, 2006, 03:52 PM
Regular
Join Date: Aug 2006
Posts: 4
Hi- I have a 3 month old son. I received a phone call from his pediatrician that he needs to have a PKU Newborn Screening taken again because the results came back a little higher than normal. He wasn't to concern. I am a little worried that something is wrong. He didn't give too much information but did mention Amino Acid. Did anyone go through this and the results came back normal the second time around.
Thanks!!
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  #2  
August 15th, 2006, 04:40 AM
Nina's Avatar Platinum Supermommy
Join Date: Dec 2005
Location: Massachusetts
Posts: 12,739
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Hi!! I don't know anything about the tests, so I looked it up! Here's what I found, I thought this might put your mind at ease.

"I was called and told that my baby's test needs to be repeated. Does that mean that my baby has a disorder?

Often times not. Reasons that your newborn screen may need to be repeated include:

Unsatisfactory specimen: There was a problem with the sample, so that the test could not be run.
Abnormal Test Result: This means that the test result was out of the normal range, but it still does not mean that your child has the disorder, it only means that further testing needs to be done. Unless your child is having symptoms, such as persistent vomiting, poor weight gain, lethargy, etc., then it is best to just repeat the test, as it is often normal on the repeat newborn screen.
Also, many nurses and doctors inappropriately state that the 'PKU was abnormal,' when they really mean that some other part of the newborn screen was abnormal. Many people inappropriately say use the acronym 'PKU' as a generic term for newborn screen."


http://www.keepkidshealthy.com/newbo...screening.html

Here's another link that may be helpful as well.

http://www.kidshealth.org/parent/system/me...ning_tests.html

Good luck and let us know how it goes!

xxx
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  #3  
August 15th, 2006, 06:11 AM
Regular
Join Date: Aug 2006
Posts: 4
Quote:
Hi!! I don't know anything about the tests, so I looked it up! Here's what I found, I thought this might put your mind at ease.

"I was called and told that my baby's test needs to be repeated. Does that mean that my baby has a disorder?

Often times not. Reasons that your newborn screen may need to be repeated include:

Unsatisfactory specimen: There was a problem with the sample, so that the test could not be run.
Abnormal Test Result: This means that the test result was out of the normal range, but it still does not mean that your child has the disorder, it only means that further testing needs to be done. Unless your child is having symptoms, such as persistent vomiting, poor weight gain, lethargy, etc., then it is best to just repeat the test, as it is often normal on the repeat newborn screen.
Also, many nurses and doctors inappropriately state that the 'PKU was abnormal,' when they really mean that some other part of the newborn screen was abnormal. Many people inappropriately say use the acronym 'PKU' as a generic term for newborn screen."


http://www.keepkidshealthy.com/newbo...screening.html

Here's another link that may be helpful as well.

http://www.kidshealth.org/parent/system/me...ning_tests.html

Good luck and let us know how it goes!

xxx[/b]
Thank you!! This was very helpful!
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