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Hives & Hashi's?


Forum: Thyroid Disorders

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  #1  
February 4th, 2010, 09:29 AM
Momof4Boyz's Avatar Platinum Supermommy
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Okay this will be long so bear with me!

I'll start from the beginning, a few months after we had our first son we decided to keep the kids close in age and started TTC again. A year later nothing happened so we decided to see a doctor. He told us we were young and healthy and should just keep trying. Another year, we decide there's something wrong, everyone but us has had a baby (or two) and we haven't, something is wrong! We go see another doctor who wants to run lots of tests, 2 months later and I think half the blood in my body later lol, he calls us in and tells me that everything was fine but thyroid test had him just confused. He said that in one test my levels were very high and the next test they were very low, he referred us to a specialist. Mr. Specialist tells me that I have Hashimotos and there is nothing he can do for me and that someday my thyroid would just die and I would know when this happened and then he could help me. As far as getting pregnant he agree'd this was probably my issue and that I should just be happy I have 1 child, people in his home country are only allowed 1 child. I get rather upset over it and I leave with nothing but a baggy full of anti-depressants. Those go in the trash and I get an appt with the doctor who referred us to him and he is just amazed at the lack of help. So he decides to try to treat me himself and puts me on a very low dose of synthroid. Well, almost instantly after starting it I am sick, super sick all the time, throwing up, stomach hell. I go back to him, more blood and he decides to change the brands, doesn't fix anything. At least point we're almost 4 years into TTC and I'm just constantly sick. So I throw the meds out and decide to start looking for a good RE, never got to that appointment, I was pregnant! Thrilled I go to my OB for my first appt and tell him about my thyroid issue and he says, "well you got pregnant so you don't have a thyroid problem" but runs a test anyway and comes back with this suprised look and says, "okay so you do have a thyroid problem" and puts me on a very low dose of levothyroxine. For the next 41 weeks and 1 day, I'm absolutely fine! Great pregnancy! Have Jay and we move to ID and suddenly my constant puking/nausea comes back and continues for months until I tell my husband I just can't take these meds! So I quit taking them and start feeling great again! Again we decide to get pregnant, it takes 2 years but we did another good pregnancy. Haven't been on thyroid meds in 3 years.

Back to current time, had Hunter in May and everything was going well. AF started back (even though I had hoped that breastfeeding would keep it away) but this time it's different. I always had very regular cycles - every 26 days like clockwork. Now my cycles are 30-40 days, extremely heavy (to the point I don't leave my house) and if I don't have a period I have spotting, I might get a week a month that there isn't some kind of spotting/bleeding. Ontop of that I was feeling very tired and blah lately and told DH I suspected I might be getting to where that jerk doctor said I would. I also had some killer joint pain and my hair started falling out and just all these weird symptoms.

Then I woke up one morning with this nasty rash down my arms and legs and chest and then my 3 yr old got it and we found out we had fifths disease. It explained everything - the rash the kind of sick-ish feeling and my horrible joint pain! I kind of blamed it for all my issues, minus the female type ones. So we had that for a few weeks and it went away, as did the joint pain. Then I started getting these big welts all over my legs, arms, stomach and back and I thought oh my gosh I've got fleas or bed bugs, something is eating me alive. No, I have hives! Of course just having Fifths Disease the assumption was that they were a reaction to the viral infection. Except, they're not going away. I have them almost everyday, benadryl makes them go away for a while then they come back.

As I've been looking on the net for info on hives I ran across articles about people with Hashi's having hives and now it's got me wondering if the hives are related to the thyroid not the infection, and the thyroid is probably the cause of my female issues.

I'm going to look for a doctor soon, as much as I hate the thought of it. They all seem to think I'm some kind of idiot who has no idea about my own body. But I know when something is off and boy howdy is my body "off". I plan to skip the benadryl the morning of the appt and then he'll probably call the CDC when he sees my legs thinking I have some sort of deadly infectious disease LOL!

Anyway, I was just curious if anyone had experienced anything like this? I was hoping for some thoughts/opinions on it!
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  #2  
February 5th, 2010, 05:13 PM
~InHisHands~'s Avatar Platinum Supermommy
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First of all, I'm Amanda & was dx with hypo in Nov '06.

Wow! What an ordeal with the dr's you have had! Sadly, it can be very common when seeking thyroid medical help. I think most of us on this board have been there before! I know I have. I have honestly not heard of anything linking hypo or hashi's to hives so I can't really help you there but I might can help you with finding a decent dr. It took me a year & 3 different dr's but I did finally find one from this web site. Actually several ladies here had to use this site to find a decent thyroid dr... http://www.thyroid-info.com/topdrs/#us.

I also highly recommend reading Mary Shomon's Living Well with Hypothyroidism. And when you do find a decent dr make sure they test more than just your TSH (typically that's all they test) but you really should get your Free T3, Free T4, & TSH checked. The book explains it all.

HTHs some!
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  #3  
February 12th, 2010, 06:06 AM
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I have hives with the hashimotos. It took a long time to get them under control, I had to take prednisone almost every day for a year to get them to go away and now I can keep them away with Zyrtec daily. Feel free to pm me
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  #4  
February 12th, 2010, 10:04 AM
The Purple Butterfly's Avatar Stacey
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ROSE!!!! Nice to see you here!!! I have read that Hashi's can cause hives. I HIGHLY recommend finding a dr (see the sticky) who will get you on the right meds. Since you have Hashi's, a T4 only supplement like Synthroid/Levox, just won't do. You can get on Selenium and it will bring down your anti-thyroid antibodies (worked for me!) and help with the symptoms....however, without your levels in the optimal range, your symptoms will hang out. Please KUP!!
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Anastasia (14) C/S, 8lbs 7oz, 20.5"
Noah (11) C/S, 8lbs 12oz, 19"
Oliver (5) VBA2C, 7lbs 3oz, 19.5"
Grayson (10/16/13)2VBA2C, 9lbs 12oz, 22"
born sleeping at 39w pg; Protein C def, FVL, PAI-1 , & MTHFR
Lavender Kate (5/20/14) 2.5oz, 6" Lost at 16w

EDD May 12th with identical twins!!!


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  #5  
February 12th, 2010, 12:53 PM
Momof4Boyz's Avatar Platinum Supermommy
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Thanks, I had suspected thyroid then to have the constant battle with the hives it's just all to fitting. Now I just have the wonderful challenge of finding a doctor willing to do more than just put me on the first med that comes to mind. *sigh*
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  #6  
February 12th, 2010, 01:34 PM
The Purple Butterfly's Avatar Stacey
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Pennsylvania Top Doctors -- Best Thyroid Doctors, Endocrinologists, Thyroidologists, Practitioners and Experts in the World as Nominated by Patients, from Mary Shomon
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Stacey, wife to Allan & Mom to:
Anastasia (14) C/S, 8lbs 7oz, 20.5"
Noah (11) C/S, 8lbs 12oz, 19"
Oliver (5) VBA2C, 7lbs 3oz, 19.5"
Grayson (10/16/13)2VBA2C, 9lbs 12oz, 22"
born sleeping at 39w pg; Protein C def, FVL, PAI-1 , & MTHFR
Lavender Kate (5/20/14) 2.5oz, 6" Lost at 16w

EDD May 12th with identical twins!!!


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  #7  
February 12th, 2010, 04:52 PM
~InHisHands~'s Avatar Platinum Supermommy
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Quote:
Originally Posted by (-: Hampton6 :-) View Post
You can get on Selenium and it will bring down your anti-thyroid antibodies (worked for me!)
Worked for me too!
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  #8  
February 15th, 2010, 03:11 PM
zkat's Avatar Mega Super Mommy
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I also have Hives with Hashi. When it was untreated/undiagnosed is was horrible and random. Now I get cold hives - where parts of my skin that are cold get huge red welps.

I also had a huge outbreak of hives on Synthroid - it was an allergic reaction. I recommend finding a good endocrinoligist. I love mine and it has made a huge difference in my treatment.

Kat.
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