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  #1  
August 23rd, 2010, 08:11 PM
Erin.minus.thyroid's Avatar Mega Super Mommy
Join Date: Aug 2010
Location: Atlanta, GA
Posts: 1,637
I filled in the intro thread above but I wanted to introduce myself and ask a few questions.

I started out hyperthyroid when my DS was 6 months old (end of 2006). Thyroid was enlarged so it was removed (jan 2008). I was on synthyroid for a couple years trying to find the right dosage and it just ended up weakening my adrenals. I have issues with T4 to T3 conversion. Switched to Erfa dessicated thyroid (jan 2010) and it seems to be helping but still not where it should be. Been waiting to TTC#2 hoping to get in better health and lose some weight before.

I was hoping I could get some advice. I have been wanting to start TTC for about 2.5years and I am REALLY getting impatient. I truly want another child and I want my son to have a sibling who is somewhat close in age. He is already 4 and Im losing hope.

All of the reading I have done makes me feel like its too dangerous to TTC. I read about fertility issues, miscarriages, late term miscarriages/stillborns, child with lower IQ, child with learning issues, etc. Just a lot of discouraging things that make me and my husband terrified to make the leap.

I feel horrible most days even now that Im doing better with my new meds I still feel pretty bad on a daily basis. If it were just me feeling worse for 9 months I would totally jump into it and do it because I had a horrible pregnancy with my son before I had the thyroid problems and I know I could do it again if I had to. But I worry for the health of the baby and I could not handle a loss of a child. I also could not handle the guilt if I had a child with medical problems that I knew were a possibility. This is why we keep waiting and waiting.

Is there anything I can do? Where can I turn? I have an endocrinologist who is really good and he has been recommended by many people. He is great with trying new things but he is fairly slow with results and changing things. I talked to my OB/GYN and they seem to have no idea why I would have a problem with a pregnancy. They said I seem perfectly fine I would just need my thyroid levels checked more often than usual.

I dont really trust the GYN because they dont seem to know what they are talking about. Should I be looking for a specialist of some sort? Are Reproductive Endocrinologists good for this sort of thing or just for people who are actually having fertility problems? We havent tried yet so im not sure if we will have problems, I do have irregular cycles though.

TIA to anyone who might be able to help
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  #2  
August 25th, 2010, 06:05 PM
NutMeg76's Avatar Platinum Supermommy
Join Date: Oct 2006
Location: United States
Posts: 20,687
I have been diagnosed with hypothyroid since 2005. I should have been diagnosed in 2002. I have had 3 pregnancies since my diagnosis. My daughters are healthy and have no issues at all. The third pregnancy ended in stillbirth, not related to thyroid at all. As long as you have your numbers monitored and increase your meds as needed you will be fine, and so will the baby.

Under treated hypo can cause fertility issues, but as long as you are getting the right meds you should be fine.

With a t4 to t3 conversion, you may want to try a low glycemic index way of eating. It will help your body utilize insulin the right way, which will improve your conversion. It should also help you lose weight.
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  #3  
August 25th, 2010, 06:06 PM
The Purple Butterfly's Avatar Stacey
Join Date: Apr 2007
Location: Atlanta, GA
Posts: 9,980
First.... I'm Stacey, the host here. I've actually never heard of Erfa. Have you ever tried Armour or Naturethroid? If you're not feeling good on it than you either need to up your dose or move onto something else. How are you taking it, how often and what's the dose? The best thing to do is to get a fresh round of blood work and go from there. Get the TSH, free T3, free T4 and reverse T3. That will tell us exactly what's going on.

I developed autoimmune hypothyroidism after DS2. I did have a hard time getting pg (19mos with 4mos of fertility treatments) but had no issues after getting pg. Smooth pg. He is 16mos and to be honest with you, he's EXTREMELY smart. Way ahead of the learning curve for his age and def the smartest of my kids thus far. I think any medical condition carries a risk but it's minimal especially when you are being treated. If your levels are normal for the most part or close enough to it.... I wouldn't expect any problems. Hyperthyroidism causes many more problems in pg than hypothyroidism. Check out the sticky for finding a good dr. Hopefully, there will be one by you. HTH!!
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Stacey, wife to Allan & Mom to:
Anastasia (13)- C/S 8lbs 7oz, 20.5"
Noah (11)- C/S 8lbs 12oz, 19"
Oliver (5)- VBA2C 7lbs 3oz, 19.5"

Baby Grayson born sleeping at 39w pg due to thrombophelia;
Protein S and Protein C deficient, Factor V Leiden , & MTHFR
(10/16/13)- 2VBA2C 9lbs 12oz, 22"

My Chart
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  #4  
August 25th, 2010, 06:26 PM
~InHisHands~'s Avatar Platinum Supermommy
Join Date: Sep 2007
Location: US - Alabama
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I'm Amanda & was dx hypo in 2006, I believe. I'm currently TTC as well. I understand the worry & reluctance but if you are doing everything in your power to be in the best health possible, you have to leave the rest up to God. You can do EVERYTHING right & still lose a child or have a child with disabilities. And then you can do EVERYTHING wrong & have a perfectly healthy child. Do EVERYTHING you can & leave it in God's hands. Stacey & Meghan gave GREAT advice! I agree about switching to some more common & a name brand like Armour or Nature-throid.

Also, I would add that I would start trying now b/c you never know if it might take longer than you expected. My son who is now 14 was a surprise but we've been TTC now for 4, almost 5 years. I have regular cycles too but apparently I don't O like I should so I've been seeing an RE. GL!
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  #5  
August 25th, 2010, 06:38 PM
Erin.minus.thyroid's Avatar Mega Super Mommy
Join Date: Aug 2010
Location: Atlanta, GA
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Thanks everyone for your responses!!

Erfa thyroid is Canada's version of Armour. I was going to try Armour but after they reformulated it I read that it isnt working as well. The Erfa has the same ingredients as the old Armour so it is absorbed better. I think it is doing a pretty good job and my labs are looking good. I just dont know why Im still having the symptoms. My doc orders TSH, free T3, free T4 and reverse T3 each time I have bloodwork done. Its been looking MUCH better since switching to the dessicated thyroid.

I take 2 grains daily, one at 7:30am when I get up and one at 1pm to keep my T3 levels from being used up too early. I just swallow it, i tried the under the tongue method but it doesnt melt well, and it tastes kinda bad.

Im very glad to hear some positive stories about pregnancies with hypo. I know that things happen when you do everything right, its just that I would feel so guilty if it happened for not being happy with the one child that I already have. People keep telling me I should just get over it and be happy with just one. I wish I could do that but I just dont think I can accept not having another child. I think I would regret it forever if we didnt even try.

DH will not even consider TTC right now. He is so worried about me and the potential child.
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  #6  
August 25th, 2010, 07:30 PM
Erin.minus.thyroid's Avatar Mega Super Mommy
Join Date: Aug 2010
Location: Atlanta, GA
Posts: 1,637
Quote:
Originally Posted by 4 Butterflies View Post
First.... I'm Stacey, the host here. I've actually never heard of Erfa. Have you ever tried Armour or Naturethroid? If you're not feeling good on it than you either need to up your dose or move onto something else. How are you taking it, how often and what's the dose? The best thing to do is to get a fresh round of blood work and go from there. Get the TSH, free T3, free T4 and reverse T3. That will tell us exactly what's going on.

I developed autoimmune hypothyroidism after DS2. I did have a hard time getting pg (19mos with 4mos of fertility treatments) but had no issues after getting pg. Smooth pg. He is 16mos and to be honest with you, he's EXTREMELY smart. Way ahead of the learning curve for his age and def the smartest of my kids thus far. I think any medical condition carries a risk but it's minimal especially when you are being treated. If your levels are normal for the most part or close enough to it.... I wouldn't expect any problems. Hyperthyroidism causes many more problems in pg than hypothyroidism. Check out the sticky for finding a good dr. Hopefully, there will be one by you. HTH!!

I just noticed you are in Atlanta Metro, I am too

updating with my most recent labs from mid July

TSH - 0.12
Free T4 - 0.8
Free T3 - 307
Reverse T3 - 27

Last edited by Erin.minus.thyroid; August 25th, 2010 at 07:34 PM.
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  #7  
August 26th, 2010, 04:53 PM
The Purple Butterfly's Avatar Stacey
Join Date: Apr 2007
Location: Atlanta, GA
Posts: 9,980
Erin, if you need a good referral to an OB who is very knowledgeable and great with thyroid support (never mind the best OB in Atlanta) LMK. I also go to an out of network dr for my thyroid when not pg and he's extremely thorough, not an endo and knows what he's doing.

I am on Armour and crush my pills. I have felt great since doing that. Have you ever had your adrenals checked? Tested for insulin resistance? They both carry the same symptoms as hypo and are a common problem for people with hypo. I am on Metformin for IR.
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Stacey, wife to Allan & Mom to:
Anastasia (13)- C/S 8lbs 7oz, 20.5"
Noah (11)- C/S 8lbs 12oz, 19"
Oliver (5)- VBA2C 7lbs 3oz, 19.5"

Baby Grayson born sleeping at 39w pg due to thrombophelia;
Protein S and Protein C deficient, Factor V Leiden , & MTHFR
(10/16/13)- 2VBA2C 9lbs 12oz, 22"

My Chart
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  #8  
August 26th, 2010, 06:35 PM
Erin.minus.thyroid's Avatar Mega Super Mommy
Join Date: Aug 2010
Location: Atlanta, GA
Posts: 1,637
Quote:
Originally Posted by 4 Butterflies View Post
Erin, if you need a good referral to an OB who is very knowledgeable and great with thyroid support (never mind the best OB in Atlanta) LMK. I also go to an out of network dr for my thyroid when not pg and he's extremely thorough, not an endo and knows what he's doing.

I am on Armour and crush my pills. I have felt great since doing that. Have you ever had your adrenals checked? Tested for insulin resistance? They both carry the same symptoms as hypo and are a common problem for people with hypo. I am on Metformin for IR.
Thanks! I would love some referrals, if you wouldnt mind sharing.

I have had my adrenals checked and they are fatigued. It seems they are getting better though. I am on Adreno Distress Guard to help improve their function. I was on a couple other things before but they didnt help much. I do not have insulin resistance, my doc checked on this. I think the adrenal stuff has been my main problem for the past couple of years so now that its getting better I think I'll be improving more.
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  #9  
August 26th, 2010, 06:41 PM
NutMeg76's Avatar Platinum Supermommy
Join Date: Oct 2006
Location: United States
Posts: 20,687
I was tested for IR and pre-diabetes and was negative too. But, switching to a diet tha timproves that has helped me immensely. The great thing about my diet is it also helps to allow the adrenals to rest and recover. I have lost over 30 pounds since I started eating my new diet. I have tons of energy too

Many people that have thyroid issues are also gluten intolerant, without actual celiac disease. This is something to look into if you are still feeling like you are tired all the time. It will help your adrenal fatigue.
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  #10  
August 26th, 2010, 07:20 PM
Erin.minus.thyroid's Avatar Mega Super Mommy
Join Date: Aug 2010
Location: Atlanta, GA
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Quote:
Originally Posted by NutMeg76 View Post
I was tested for IR and pre-diabetes and was negative too. But, switching to a diet tha timproves that has helped me immensely. The great thing about my diet is it also helps to allow the adrenals to rest and recover. I have lost over 30 pounds since I started eating my new diet. I have tons of energy too

Many people that have thyroid issues are also gluten intolerant, without actual celiac disease. This is something to look into if you are still feeling like you are tired all the time. It will help your adrenal fatigue.

Thanks! My doctor did a test and told me that I do not need a gluten free diet. Are you saying that gluten free may still be beneficial even if my test said it wasnt a problem?

is there a specific diet that you are following? Id love more info. I have been working on trying to find the right diet for me. Right now I am trying to eat healthy and I am vegetarian
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  #11  
August 28th, 2010, 01:07 PM
NutMeg76's Avatar Platinum Supermommy
Join Date: Oct 2006
Location: United States
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You are a stronger person then I a, I couldn't hack being vegetarian. I tried a few time, even pescatariana nd lacto-ovo was too hard for me. I like meat, I need the extra protein to keep my blood sugars level.

How do you get your protein? I am not saying you can't get protein, but if you have a thyroid difficulty, getting protein may be tricky as a vegatarian. Since soy is a big no-no for people that have thyroid issues.

I eat 'primal', which means no grains, no beans, no potatoes. As a vegetarian you woulnd't be able to really eat enough if you followed my way of eating.

But, yes being grain free, even if the test for celiac came back negative can be helpful. Especially for people that have thyroid problems. But, some people do well just by reducing their carbs, even if they eat grains.

I eat a higher calorie, higher fat diet than I used to and have lost weight and improved thyroid function, brain function and my lipid profile. I have also eliminated my hypoglycemia.

This is the bear bones basics of my lifestyle Paleo (Neanderthin) introduction

This site has links to mor ein=depth informaiton if you are interested. Paleolithic Diet (Paleo, Primal, Caveman, Stone Age, Hunter-Gatherer Diet)
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When they persisted in questioning him, he straightened up and said to them, "Let the person among you who is without sin be the first to throw a stone at her." John 8:7
Sail Back to Me
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  #12  
August 28th, 2010, 02:18 PM
Erin.minus.thyroid's Avatar Mega Super Mommy
Join Date: Aug 2010
Location: Atlanta, GA
Posts: 1,637
Quote:
Originally Posted by NutMeg76 View Post
You are a stronger person then I a, I couldn't hack being vegetarian. I tried a few time, even pescatariana nd lacto-ovo was too hard for me. I like meat, I need the extra protein to keep my blood sugars level.

How do you get your protein? I am not saying you can't get protein, but if you have a thyroid difficulty, getting protein may be tricky as a vegatarian. Since soy is a big no-no for people that have thyroid issues.

I eat 'primal', which means no grains, no beans, no potatoes. As a vegetarian you woulnd't be able to really eat enough if you followed my way of eating.

But, yes being grain free, even if the test for celiac came back negative can be helpful. Especially for people that have thyroid problems. But, some people do well just by reducing their carbs, even if they eat grains.

I eat a higher calorie, higher fat diet than I used to and have lost weight and improved thyroid function, brain function and my lipid profile. I have also eliminated my hypoglycemia.

This is the bear bones basics of my lifestyle Paleo (Neanderthin) introduction

This site has links to mor ein=depth informaiton if you are interested. Paleolithic Diet (Paleo, Primal, Caveman, Stone Age, Hunter-Gatherer Diet)

Thanks for the info. For me its not about being strong, I dont really like meat. I never really liked meat. I would eat very little of the meat that I would make for family meals.This way I end up eating more healthily because im making foods that are full meal rather than just eating the sides of a meal. We do eat a lot of beans and Im lacto-ovo so that is where the protein comes from. I dont eat soy at all and neither does my son but my husband does eat small amounts here and there.

Thanks for the links, i will check them out.
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