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Forum: GER- Reflux

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  #1  
December 22nd, 2008, 04:31 PM
Mega Super Mommy
Join Date: Feb 2008
Location: Alabama
Posts: 4,507
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Hey ladies! My name is Kym (25) I'm a SAHM mom to Carson, 4 1/2 months. He has reflux. He was 3 weeks early and his lungs were not developed all the way, so he spent a week on the ventilator and 17 days in the NICU, so for reflux to be our only big issue right now, we are pretty lucky, but BOY is it rough! The poor thing just screams out in pain when it happens. Sometimes he doesn't even produce spit up, you can just see the look on his face when he "refluxes" and he just screams out. I just pick him up and hug him. Poor baby. Then there are the days when he is just a constant dribble of spit up all day long. Sometimes my house will smell like spit up b/c that is what he does all day! HE will spit up 5 minutes BEFORE its time for his next bottle, I dont' get it.

He was diagnosed in the hospital b/c he kept spitting up really bad when they were trying to introduce feedings to him. They did not treat it with medicine first, just smaller feedings and keeping him upright for 30 minutes after feedings, but at 5 weeks we started Zantac.

WE upped his dose at 3 1/2 months, but it just stopped working for us, so she has switched us to Prilosec, we will be starting that soon. WE have to get our prescriptions filled at a compounding pharmacy (i replied about this in the post about Prilosec) and they are closed this whole week. So we have to suffer with the Zantac until next week.

Anyway, sorry so long.. I know alot of your babies have it much worse than Carson does, but I'm looking forward to joining in!!

Oh and Hi Stephanie!! I"m in your DDC!!!
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Kym (26); wife to Brandon(25), Mommy to Carson (2), and a child of GOD
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  #2  
December 26th, 2008, 11:33 PM
lmarie13's Avatar Super Mommy
Join Date: Sep 2008
Location: Florida
Posts: 622
Hi! My son was just diagnosed a couple of weeks ago. He was also early and had respiratory distress and was on a vent and a c-pap. The doc that diagnosed Noah said reflux is quite common in preemies.

We are on Zantac right now. It isn't working very well. I tried to give it some time to work but I am going to call his pedi on Monday. My poor kid just cries so much! He is back to arching his back and crying in pain and wanting to eat every hour. The med helps a little but I know when its worn off because he gets more and more upset. Noah doesn't spit up though. I don't think I've ever seen him spit up....


Hope your little guy starts feeling better!

Lisa
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Cloth-diapering, baby-wearing, co-sleeping, natural birthing Mama of 2
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  #3  
December 28th, 2008, 05:13 PM
Mom of 3 Preemie girls
Join Date: Jul 2008
Location: Home?!
Posts: 3,943
Hello and welcome. Sorry the holidays and my pregnancy keep me from posting a lot.
Crystal is my GERD'ling. She was a NICU babe at 8wks early but only issues she has are related to her GERD. Go figure
She was on zantac at first, then prilosec, then prevacid liquid, then prevacid powder packets (mixed with 5ml of water), the combos of those with Axid, then nexium and axid etc. Shes 21m and still on Nexium 20mg and Axid. She takes Miralax daily for constipation from the gastroparesis, and she was on reglan but the neurological side effects were no longer worth it and we stopped it. I use maalox for break thru symptoms.
She has been thru probes, UGI, endoscopes, tubes, adenoid removal, follow thrus, scanti scans, etc. We were told the "common" age is 11months to outgrow it which well that came and left. Its just her.

If the medicines are working and your not working with a Pediatric GI thats my suggestion. 1. get a ped gi and 2. have them work with new meds or combos to help ease the pain for the kiddos.

NONE of the meds are miracle workers and may not stop the spitting up, crystal still does if she lays to close to eating. But the difference between now and then, it doesn't burn her skin, doesn't make her scream uncontrollable, and she can tolerate it moderately
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  #4  
December 29th, 2008, 08:01 AM
Veteran
Join Date: Jun 2008
Location: Southern CA
Posts: 218
My suggestion is to really research any meds that your doc's or G.I's suggest. Noah is on Prevacid and Reglan. If i knew what I know now about the Reglan he wouldnt be on it. Does he do good on the Reglan? Yes. Do I want him on it? No. The more I read about it the more discouraged i get....I am looking into possibly wheening him off of the reglan, but I need to talk with his G.I first....it's going to be a long road. I can already tell.

I do know that the Zantac only works for a few weeks before something else needs to be given. Then again, every child is different, and every child racts different to meds. Good Luck. Seek a G.I's opinion first and when they suggest meds ask what the common side affects are and figure out a plan - we didnt do this and I wish we did.
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  #5  
December 29th, 2008, 01:50 PM
Super Mommy
Join Date: Aug 2006
Location: Virginia
Posts: 911
Hi Kym! Welcome! Yeah August 2008 DDC!

This board has been very helpful to me.

Another message board I find very helpful is: http://www.infantreflux.org/forum/default.asp
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