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My name is Krystal and my first born is Nathan who was born Jan 11/09. Nathan was diagnosed with having torticollis when he was just 3 weeks old. I've just started having time to heavily research this and came across Sandifer's Syndrome. It's related to GER where your baby cries, arches his back and tries to "pull away" from the pain he's having. Some parents apparently think it's like a seizure because that's what it looks like.
Nathan's done this.. even to the point of having his arms flailing near his head!
Has anyone else heard of this or have experience with it?
Both my GERD'lings did those symptoms and much more. They would refuse to eat because it hurt and both were labeled failure to thrive.
I have no idea about the torticollis, but have you been referred to a GI specialist. I really think they are a god send if you get a good one. THey will lead you in the right path and take the appropriate testing needing to find out the problem and come up with a solution .
Yes! I was lucky that I'd seen it in kids I worked with over the years, so I didn't panic when Milo did it! I think that his is finally being managed with a modified diet, a fundo, and meds. We think that he has tort, too, but his ped hasn't really focused on that-no one has yet. We've just been trying to take care of the other stuff. So, unfortunately, I can't really offer any advice on that because we're hoping to get to the point of official diagnosis soon!
Good luck! It's scary, but can be managed! Nathan is a cutie!