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nissen fundoplication


Forum: GER- Reflux

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  #1  
March 12th, 2009, 06:26 PM
Ditzzy's Avatar Stupid Lamb;)
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Hi, ladies. I was curious to know if your babies have had a nissen fundoplication? My DD has reflux due to severe laryngo/tracheomalacia and may need to have a nissen done this Summer.

Also, Ava is on 60 mg/daily of prevacid (liquid compound). Is there any med stronger or any other surgery alternatives?

Thanks for reading this
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  #2  
March 20th, 2009, 08:45 PM
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Hey there. Luckily, my son hasnt had to have surgery for his reflux. I have however read up on the Nissen Surgery...I know that there is alot of controvery about it. What are your thoughts on it? Is your daughter gaining good weight, and does the Prevacid help? My son too, is on Prevacid and we just weaned him off of reglan. I have to say his reflux is gone almost. I dont think there are any other alternatives to the Nissen Surgery...I was reading about it, and there isnt much else. Keep us posted.
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  #3  
April 7th, 2009, 12:45 PM
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I would say if the weight is good and she is tolerating life on the meds, that may keep her from the surgery if you feel its the best option.

Calleigh is my newest gerd'ling. She is a poor weight gainer and the meds don't do mcuh at all.

Your daughter is about the age my first daughter was placed on Nexium. Its a pill you have to either break it open and give with something like applesauce. Or I taught Crystal how to swallow the pill so. Its 20mg and its been the ONLY med that has given her relieve. She has been on everything under the sun and more.

Good luck and kup
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  #4  
April 10th, 2009, 02:44 PM
iamkc's Avatar Platinum Supermommy
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Hi! My son just had this done in March, and we believe that it was his only option. All of the reflux meds made him vomit harder. He had a g-tube placed when he was 11 weeks old, but the doc didn't do the fundo then, even though we were persistent that he was a vomiter. So, several hospitalizations and studies later, we had it done. Milo was doing great in 36 hours. He was an all-day, every day vomiter, but hasn't thrown up since. He's on Baclofen and Zegerid. The Zegerid doesn't keep him from throwing up, but changes the pH of the acid. He was put on Nexium, Prevacid, Zantac, Prilosec, Pepcid, and a few others, then Zegerid. They all just made him throw up more, except the Zegerid. He still threw up, but I think that it hurt less.

I don't think that the fundo is for everyone, but if your child does start to fall behind in growth, has more and more trouble eating because it hurts, or just if nothing seems to be working, I'd seriously consider it. No one wants their kid to have surgery, but in our case, it was SUCH a boost to Milo's quality of life that I KNOW that we made the right decision. But if she's doing well with meds and diet, she may not need it!

IF you go through with it, make sure that they do a couple of studies to determine how your child empties. Milo doesn't empty well, but the Baclofen seems to help enough that he didn't need the pyloroplasty. If you get a fundo and your child doesn't empty well, it can destroy the fundo and just be a miserable ordeal all-around.

Good luck with whatever you end up having to do! I know that you'll make the best decisions for your Ava!
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  #5  
April 18th, 2009, 01:05 PM
Ditzzy's Avatar Stupid Lamb;)
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Thanks for the replies.
Ava had been on capsules (that I broke and put in food) at 8 wks. I wasn't thrilled about her eating at 8 wks, but that's another post. She gains well, since she is on steroids, has had thickened bottles with extra calories (to prevent aspirating) and baby food so young. I think the prevacid makes her worse. The thing is she can only handle middle consistancy bottles or food. Anything thin gets aspirated or thrown up, anything thicker than stage 2 gets choked and gagged on. She can only take 4 ounces at a time without throwing up. She has a huge oral aversion, not even toys go in her mouth.

She has a scheduled hospital stay in May, so she will have an endoscopy, biopsies and a video swollow study then as well. She's an odd case since her airway is so tricky right now. I'll keep you informed. Thanks ladies!
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