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PLEASE update me on your reflux baby (xp)


Forum: GER- Reflux

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  #1  
August 28th, 2010, 08:24 PM
npayne's Avatar Veteran
Join Date: Nov 2009
Location: Jamestown, NY
Posts: 399
What medicine(s) have you tried? At what dosage? Did it work? How long did it take to work?
I know several of you have recently started your baby on meds & I haven't seen many updates.

Natalie is still having a horrible time with her reflux. Prevacid (liquid) only worked for 5 days. Axid only worked for 3 days. She is screaming in pain again, and it's breaking my heart. I just want her to be a happy baby. I have been doing a lot of research online, and I just don't know what to do next. I'm thinking about Zegerid, but it hasn't yet been approved for babies & it causes painful gas. I'm also thinking about doing Buffer Babies (mixing the BB solution with OTC Prevacid at home), but I'm nervous about mixing my own meds. Another option is to go back to liquid Prevacid, but have the pharmacy mix a fresh bottle every week so it won't degrade and stop working. Natalie has an appt. with a pediatric GI, but we can't get in until Sept. 29! I can't put her through another whole month of being in constant pain. I can't sleep at night because I'm constantly going over all the options in my head. I feel like Natalie is getting short-changed...she has been miserable for the first 2 months of her life. My heart aches for her.
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  #2  
August 28th, 2010, 11:56 PM
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Try the solutabs, they don't break down like the liquids do and I think they are Prevacid.
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  #3  
August 29th, 2010, 04:47 AM
npayne's Avatar Veteran
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OUr insurance won't pay for the solutabs, so I called the pharmacy to find out the cost. $250 a month! I wish we could afford it, but we just can't, especially since we will soon be paying $800 a month for her daycare.
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  #4  
August 29th, 2010, 05:42 AM
~LaurenNoel~'s Avatar Platinum Supermommy
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Went through every medication and food change a person could possibly try, and nothing worked but time. He sees a GI specialist too, at Arnold Palmer Hospital for Children.

With medications like Prevacid and Axid, you have to use them for at least 2 weeks to get the full effect. I know people say it works for a few days, then stops (we went though this too), but you have to make sure you give the medication enough time. Also, those meds willl NOT stop the spitting up, and the baby might still be crying from the discomfort of having formula/bm coming back up. The meds simply stop any damage from happening to the esophagus.

Is she on formula or breast milk?



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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11

Last edited by ~LaurenNoel~; August 29th, 2010 at 05:45 AM.
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  #5  
August 29th, 2010, 07:35 PM
npayne's Avatar Veteran
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Location: Jamestown, NY
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Quote:
Originally Posted by ~LaurenNoel~ View Post
Went through every medication and food change a person could possibly try, and nothing worked but time. He sees a GI specialist too, at Arnold Palmer Hospital for Children.

With medications like Prevacid and Axid, you have to use them for at least 2 weeks to get the full effect. I know people say it works for a few days, then stops (we went though this too), but you have to make sure you give the medication enough time. Also, those meds willl NOT stop the spitting up, and the baby might still be crying from the discomfort of having formula/bm coming back up. The meds simply stop any damage from happening to the esophagus.

Is she on formula or breast milk?



Natalie was on breast milk for the first month, and then we switched to Nutramigen at her pediatrician's request. We also tried Alimentum & AR. She is currently on soy, which is helping with her gas & grunting.
She was on liquid Prevacid for 3 weeks...in that time, she was only content on days 3-7. After the 3 weeks, we switched to Axid. She has now been on Axid for 12 days, and she was only content on days 5-7. I write notes on a calendar every day, or I would go out of my mind trying to remember!
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  #6  
August 30th, 2010, 10:04 AM
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Are you still producing milk? In most cases reflux is only made worse by FF, even the hypoallergenic ones. And what was the Pedi's reasoning for the switch?
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  #7  
August 30th, 2010, 12:32 PM
npayne's Avatar Veteran
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When I stopped breastfeeding and started pumping, I was not producing enough milk. It would take me half an hour of pumping to get an ounce! So I just threw in the towel. Not to mention that I wasn't getting any sleep because Natalie was screaming all day & night. The pediatrician thought that my breast milk was causing digestive problems for Natalie.
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  #8  
August 30th, 2010, 02:42 PM
~LaurenNoel~'s Avatar Platinum Supermommy
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Were you eating dairy? We had that problem too. Wesley did better with breast milk as well. I became pregnant when he was 6 months, and I dried up completely. Usually it is easier to comfort them by nursing as well.

You said something about daycare, so do you work? I now it is hard to pump enough in that situation.
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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  #9  
September 1st, 2010, 11:24 AM
Breanne's Avatar Veteran
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Location: Ontario, Canada
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Were now on day 22 of the Prevacid solutabs and its starting to make a difference. He is still projectile vomiting once a day but its a lot better than every feed! I find he still gets in a lot of pain in the evenings for about 3 hours and still isn't eating the full amount he should be. I'm meeting with the doctor on the 7th for a follow up so I will let you know what they say. I understand how frustrating it is though to see them in so much pain... you just feel helpless, hopefully they can figure something out for your little one.
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  #10  
September 2nd, 2010, 06:13 AM
~LaurenNoel~'s Avatar Platinum Supermommy
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Breanne, I'm glad you found something that is helping.
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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  #11  
September 2nd, 2010, 06:43 PM
npayne's Avatar Veteran
Join Date: Nov 2009
Location: Jamestown, NY
Posts: 399
Quote:
Originally Posted by ~LaurenNoel~ View Post
Were you eating dairy? We had that problem too. Wesley did better with breast milk as well. I became pregnant when he was 6 months, and I dried up completely. Usually it is easier to comfort them by nursing as well.

You said something about daycare, so do you work? I now it is hard to pump enough in that situation.
No, I wasn't eating dairy when I was BFing. I also eliminated acidic things, like citrus fruits and spaghetti sauce. Nothing seemed to help her.

I am a teacher, but I took 3 months off from work to stay home with Natalie. I will return Dec. 1.
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  #12  
September 3rd, 2010, 06:18 AM
~LaurenNoel~'s Avatar Platinum Supermommy
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The reason we bring up breast feeding, is that although the baby may spit up as much, breast milk is a natural antacid.

"Reflux is less common in breastfed babies. In addition, breastfed babies with reflux have been shown to have shorter and fewer reflux episodes and less severe reflux at night than formula-fed babies [Heacock 1992]. Breastfeeding is also best for babies with reflux because breastmilk leaves the stomach much faster [Ewer 1994] (so there’s less time for it to back up into the esophagus) and is probably less irritating when it does come back up."

This is a great website. You might want to take a few minutes to look it over.

kellymom.com :: Spitting Up & Reflux in the Breastfed Baby
__________________
///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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