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When was your LO diagnosed?


Forum: GER- Reflux

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  #1  
September 12th, 2010, 05:17 PM
~LaurenNoel~'s Avatar Platinum Supermommy
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Location: Florida
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At what age was your little one diagnosed? Did you have to fight to get doctors to take you seriously?
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

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Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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  #2  
September 12th, 2010, 06:43 PM
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He was officially diagnosed at 6 weeks (3 hellish weeks after it showed up) and it took us until he was 10 months old and still only 12 lbs to get a referal to the Gastro. In the meantime, on top of not gaining weight or growing he lost all of his beautiful hair his nails stopped growing (I didn't have to cut them from 2 months to almost a year old) and he fell farther and farther behind in developmental skills.
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  #3  
September 13th, 2010, 12:14 AM
taterm's Avatar Platinum Supermommy
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She was diagnosed at 6 weeks. Her pediatrician actually had a child that had silent reflux so as soon as he heard the symptoms, he knew exactly what it was.
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  #4  
September 13th, 2010, 09:34 AM
~LaurenNoel~'s Avatar Platinum Supermommy
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Wesley had problems immediately. He was diagnosed with IUGR. He was 5.8lbs at 40 weeks, and had been that size on ultrasound 4 weeks earlier (he stopped growing). His digestive system was not fully developed. His ped took us seriously, and Wes started seeing a GI specialist at about 8 weeks.
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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  #5  
September 14th, 2010, 10:36 PM
dcdep's Avatar Mega Super Mommy
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Location: Wisconsin
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Elliott had problems pretty early on, but I had no idea what it was. Finally, one Saturday when he was 5.5 weeks old, my DH and I took him to the on-call pedi because we couldn't figure out what was wrong. She basically told us that we were just new parents and he was acting normal for a baby, and there was nothing wrong with him, and he probably had GAS.

I didn't appreciate the way she blew us off, so I took to researching things for myself. As soon as I did, it seemed obvious to me that he had reflux. So I called our pedi on Monday, got an appointment, and that Tuesday our pedi diagnosed him. We tried Zantac first, then Prevacid, and after he got to a certain dose, we were referred to a GI specialist which has helped a lot.
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  #6  
September 15th, 2010, 04:45 PM
QueenCrafty's Avatar Courtney
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Location: North Carolina
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I suspected something immediately when she would throw up what seemed like everything she just ate. The pedi at that first appointment blew me off. At her 2 week appointment she had already started screaming and arching at every feeding and she stopped sleeping unless I was holding her. The pedi I saw that day agreed with my suspicions. She was prescribed Zantac which did nothing. At 6 weeks I took her in again and was prescribed Prevacid. We saw improvements in a few days. She's been off the meds for about a month. She still spits up a ton but the screaming has stopped.
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  #7  
September 16th, 2010, 05:13 AM
ashj_1218's Avatar Hiya!
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Liam was diagnosed at a little over 10 weeks. Looking back, he had issues immediately though, even in the hospital he would arch his back and make swallowing motions randomly.

By the time we realized something was seriously wrong, Liam was screaming all the time, not gaining weight, wouldn't sleep on his back, and was just generally miserable. He also had "silent reflux," very seldomly spit up a significant amount. Just little bits all the time. He was almost textbook in the silent symptoms though, once I realized what was wrong.

The ped noticed that Liam seemed really slow on weight gain (at 10 weeks, he had only gained 2lb. from his "leaving the hospital" weight...which was 10oz less than his birth weight). So when I made the appt at 10 weeks and described why I was there, she knew immediately what the issue was. She put him on Axid (less alcohol, since he was so tiny still, not yet 8lbs) and it worked great!

He got off the meds slowly around 8 months and now, at almost 11mo, he is a healthy 19lbs and doesn't have a lot of reflux issues (he still has it come up sometimes, but it is pretty rare). I feel lucky that my ped knew what it was. I can't imagine going on with the poor kid in pain like that. Not to mention, I was losing my mind with the screaming and poor feeding.
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  #8  
September 16th, 2010, 06:13 AM
~LaurenNoel~'s Avatar Platinum Supermommy
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Thanks for sharing ladies.
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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  #9  
October 2nd, 2010, 02:02 PM
Zombiie's Avatar Veteran
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My LO was diagnosed when she was 5 weeks old. I'm on a different forum and I TTC'ed for 2 years, I saw posts about reflux often. I noticed the symptoms in LO right away because of everything I read on that forum.

At her one month appointment we brought up that we think she has reflux, her pedi said burp her more (we were burping her every ounce). She was diagnosed a week later after we brought her back and her pedi seen LO eat and the symptoms LO showed.
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  #10  
October 2nd, 2010, 06:21 PM
~LaurenNoel~'s Avatar Platinum Supermommy
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It's great you were so proactive. Good job momma!
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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