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Forum: GER- Reflux

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  #1  
November 7th, 2010, 12:24 AM
momma2princesses's Avatar Platinum Supermommy
Join Date: Feb 2008
Posts: 8,604
Just some questions to see what I should expect....whats "normal"


Did your LO's have any testing done?

Have you eliminated foods?

Are you getting crap about stopping bf'ing because its hurting your baby (ugh)?

How was the diagnosis made?

DId or has your baby lost/gained weight because of the reflux?

What type of support has your Dr given you?

How often do you go in?

What medicines have you tried?

Have you tried other means of helping? (chirpractor, probiotics, massage?)

What works for your LO?

How often does your baby cry?

__________________________________________________ __
Did your LO's have any testing done? None

Have you eliminated foods? Dairy so far

Are you getting crap about stopping bf'ing because its hurting your baby (ugh)? ALL THE TIME, I also hear she is spoiled, just colicky, and allergic to my milk.

How was the diagnosis made? Dr. just looked at symptoms and then put her on zantac then prevacid.

DId or has your baby lost/gained weight because of the reflux? Gained weight like crazy because all she wants to do is nurse and she has silent reflux so she doesnt spit up at all very often.

What type of support has your Dr given you? None.

How often do you go in? Every two weeks for some reason or another

What medicines have you tried? Zantac, Prevacid

Have you tried other means of helping? (chirpractor, probiotics, massage?) We might try the chiro this week

What works for your LO? Nothing

How often does your baby cry? She cried for 7hrs straigth today. SCREAMING. I am so upset and worried
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  #2  
November 7th, 2010, 10:53 AM
BusyMom4's Avatar Veteran
Join Date: Oct 2010
Posts: 217
i dont post here often, but i read all the time. i have 2 chronic refluxers. my ds is a 32 week preemie who had bad reflux and stayed on medicine for it until he was 3 years old. my dd is a 33 week preemie who will be 6 years old in 3 months and is still being treated for reflux.

Did your LO's have any testing done? no

Have you eliminated foods? no

Are you getting crap about stopping bf'ing because its hurting your baby (ugh)? no, i did not. dd breastfed for 2 years 7 1/2 months and ds breastfed on demand until he was 2 1/2 and embarrassingly, he is now 3 years 1 month, and still nurses once a day. dont let anyone convince you to stop nursing. if you switch your baby to formula, she will have more problems with reflux. you can eliminate things from your diet, dairy could help, but also try eliminating stuff that would cause heartburn in you like spicy foods and acidy juices. foods that cause heartburn in adults will also aggravate reflux in a nursing baby. if you try eliminating these things and see no improvements, then go back to your normal diet, but give it about 2 weeks.

How was the diagnosis made? by symptoms, then trying reflux meds, and seeing a huge difference.

DId or has your baby lost/gained weight because of the reflux? yes. ds was ftt for a long time, until he was about 2 years old. he was only 12 lbs at 7 months old when they had to double his dose of meds, and 19 lbs at 20 months when they put tubes in his ears. dd was and still is ftt. she will be 6 in 3 months and just made 34 pounds. she has several medical issues besides reflux though.

What type of support has your Dr given you? ds dr has always been supportive, but dd sees several drs because she has several issues, and some are more supportive than others. her pulmo doc was very supportive because he understands how important it is to protect her fragile lungs from any aspiration. now, you are going to find some drs that dont want to support you. infant reflux has only recently been recognized as a serious condition, and some drs are not willing to help unless there are serious complications. if your doctor doesnt want to help, look for one who will, or insist that something is wrong. reflux is very painful, and no one wants to see their baby suffer.

How often do you go in? a lot. i cant remember exactly, but when ds had his dose adjusted, we were always told do come back in 2 weeks for a weight check and to see how he was doing. he had many many weight checks in his first 2 years and so did dd.

What medicines have you tried? prevacid. prevacid is a ppi and ppis are the best defense against reflux. our doc never messed with the ph blockers like zantac, axid and so on. they rarely work for serious infant reflux; or so we were told.

Have you tried other means of helping? (chirpractor, probiotics, massage?) prevacid, and we did a feeding schedule with ds. he was much happier that way. we also did the normal keep him upright after feeding, and the usual tips for reflux babies.

What works for your LO? prevacid was our life line

How often does your baby cry? ds cried a lot, and that was part of what helped make the diagnosis, but he also had reflux-related cyanotic spells with other symptoms.



how long did you keep her on the prevacid, and what was the dose? what other symptoms does she have?
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Last edited by BusyMom4; November 7th, 2010 at 10:59 AM.
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  #3  
November 7th, 2010, 04:02 PM
~LaurenNoel~'s Avatar Platinum Supermommy
Join Date: Mar 2009
Location: Florida
Posts: 7,909
Did your LO's have any testing done?
Yes, Upper GI screen, ultrasound of belly. He also has his stool tested every few visits (it often is positive for blood).

Have you eliminated foods?
All milk

Are you getting crap about stopping bf'ing because its hurting your baby (ugh)?
No. I was encouraged to stop (at 6 mths) and try a hypoallergenic formula.

How was the diagnosis made?
Upper GI screen. He was diagnosed with severe GERD

DId or has your baby lost/gained weight because of the reflux?
He has always been on the small side

What type of support has your Dr given you?
His specialist is awesome, but it took a long time for me to get a referral from Ped.

How often do you go in?
Every few months

What medicines have you tried?
Prevacid, Reglan, Maalox, Gripe water, Mylicon, Zantac, and Axid

Have you tried other means of helping? (chirpractor, probiotics, massage?)
No

What works for your LO?
He just gew out of it mostly with time, around 12 mths

How often does your baby cry?
Not much anymore, but he used to 24/7. No joke, he never slept, just screamed like we were pinching him.
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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  #4  
November 7th, 2010, 08:54 PM
momma2princesses's Avatar Platinum Supermommy
Join Date: Feb 2008
Posts: 8,604
HEr main symptoms are: screaming ALL the time (like pinching...just like LaurenNoel mentioned), big hard swallowing, coughing a lot, rattling in lungs, mucus vomit, (doesnt really spit up though), hiccups all the time (at least after every feeding if not in between), buckling, random painful screams, runny nose, arching her back when right before screaming,

more..but I am tired and going to bed now...Im tired of thinking about this right now
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Avis (6)
Violette (4)
Suzannah (2.5)

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  #5  
November 8th, 2010, 04:11 PM
~LaurenNoel~'s Avatar Platinum Supermommy
Join Date: Mar 2009
Location: Florida
Posts: 7,909
I'm sorry hun. I know it is really difficult. Feel free to ask any questions, or just vent for support. *hugs*
__________________
///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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