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Forum: GER- Reflux

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  #1  
July 29th, 2011, 12:20 PM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
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I am Sarah, mommy to Danny who just turned 4 on July 13th. I was here on and off about 3 years ago but now...I am back. Danny's problems then were due to an egg allergy. He used to vomit 12-15 times every day but the doctors all said that the ph probes were normal. We cut out egg and after 24 hours without egg he stopped vomiting and had no similar problem since then. Over the past three years he has become a very complex child. I will skip the leading up to and just go over where we are now. He is allergic to eggs, milk, soy, tomatoes, carrots, red 40, cinnamon, tree nuts, and strawberries. He also has several environmental allergies which contribute to reactive airway disease. The allergy/asthma office he goes to diagnoses asthma after the age of 5 following a pulmonary function test an the child having no signs of outgrowing the problems. He has complete exocrine pancreatic insufficiency. Basically that means that all the enzymes your pancreas produces to digest food...he doesn't make. He takes a prescription form of the digestive enzymes to replace them. He has had a few episodes of low white counts, low red blood counts, and has had symptoms of low platelet counts though the docs have never ordered a CBC in time to catch the counts until after symptoms are gone. At this point he has to have CBC's drawn every three months and in between anytime we suspect problems. He has had a horrid time with weight. We have never been able to get him to gain weight the way he should. In March he stopped eating overnight. On the 19th he ate a little over 3000 calories...on the 20th and 21st he ate 0...literally. He is 39.5 inches tall and weighs between 31 and 32 pounds. He fluctuates in that range occasionally going down to around 30 pounds but not above 32 for over 8 months now. The GI did an EGD with biopsies and a ph probe overnight July 25-26 and called with the results yesterday. He has mild reflux which is causing mild esophagitis. He also has mild gastritis, bile reflux, and ulcers starting at the part of his stomach that joins the small intestine (duodenum) and down into his small intestine as far as they could see...which granted is not far but still definitely not normal. The GI is suspecting yet another food allergy to be at fault since the biopsies showed no sign of EoE, Celiac, or anything else. Their best guess is that a food allergy is irritating the lining of his stomach and causing ulcers farther down and the irritation in his intestines is causing the bile reflux. Right now he is on the following meds to combat the daily issues...
Advair
Flonase
Afrin
Singulair
Tums
Multivitamin
Prevacid
Zantac
Periactin
Zenpep
Karafate
Pulmicort

He also takes these as needed...
Xopenex
Epi Jr
Hydroxizine

I hope to get to know you and your LO's better!
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  #2  
August 9th, 2011, 04:17 PM
~LaurenNoel~'s Avatar Platinum Supermommy
Join Date: Mar 2009
Location: Florida
Posts: 7,909
WoW! I am so sorry your poor little man is going through all of that! Welcome to the board.
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

...............................

................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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