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I was the host for this board, but our children have been very, very ill with GI and other issues. I am going to be here more again, as things clam down somewhat.
Our son Wesley(3) has GERD, Gastroparesis, Reactive Airway Disease, is FTT (very underweight), and suspected Mitochondrial disease. He is currently trialing a gastric stimulator (pacemaker) so that he can tolerate G-tube feeds and some food by mouth (still no liquids). Our daughter has a g-tbe, but eats by mouth, Both had anti-reflux (Nissen Fundoplication) surgery.
I am an open book and here to help in any way I can.
///...........................Lauren, wife to Jay, mom to Wesley and Ruby