Mrs Howdy

brandy267 · #1 July 14th, 2007, 05:49 AM

How did it go? I have been thinking about yall and hoping that you were able to get some answers. Please update us when you can!

mrshowdy · #2 July 14th, 2007, 01:57 PM

Thanks for asking

Yesterday was not fun, but today things are much better. The only results I have so far is that they see nothing out of the ordinary on the scope, so we are just waiting for the biopsy's to come back and then go from there

the funniest part was the very first medicine they gave him. It was a "take the edge off" med so that he wouldnt be scared of the OR, just in case we had to go back for something else.

It made him look like he was drunk, he kept starring at us with this blank look, and the he would just start cracking up. It was so hilarious, and broke up the stressful day.

brandy267 · #3 July 14th, 2007, 05:50 PM

I am glad things are better today. I know that you would never want anything to be wrong with Layne, but isn't it so frustrating when they keep saying nothing?! How long did they say it would take the biopsy results to come in?

mrshowdy · #4 July 15th, 2007, 08:47 AM

Frustrating beyond belief. My GI nurse said to call her on Wednesday and she should have results of the biopsy. We were told this was just the beginning of lots of tests until they figure out whats going on. You are right, I dont want him to be ill, but I would much rather them say "this is what is wrong, and here's how we fix it", ya know? Does that make me a bad mom?

scmirob · #5 July 16th, 2007, 04:15 AM

I am glad you feel a little better getting this done! Its so hard to see our little ones having to go through this but its for the best. I don't think you are a bad mom! When our children are going through things that we can't seem to help its only normal to want someone to help us help them. Its hard especially when they are babies and cant really tell us exactly whats going on in their own little bodies. We then have to guess and try just by what we see. These tests help us to know how to treat the problem! Not the symptoms. We want our children to be in the best health and so after all that I think you are a wonderful mom!

I am in a situation with my two oldest children in having to get them screened every 2 years since their dad passed to cancer and I sometimes feel the way yyou feel. My daughter was complaining about some symptoms her dad had and it scared me to death so thats when we started the screening. Because his was so aggressive I need to really be on top of their screening but when it comes time to do the tests I would struggle because I think as moms were caught in the middle. We want to get to the bottom of things and help them feel better but we need to do these uncomfortable tests to do that and well that means watching our babies go through things we normally wouldnt want to put them through. But, I always finish my thoughts with, they are ours and we are to do the best we can for them. Well, sorry for babbling just wanted to let you know your not a bad mom and your not the only one who feels that way!

I hope the results come back good and I also hope you find whatever it is thats bothering your little buddy.
misty

rachna · #6 July 16th, 2007, 05:00 AM

Glad things are better today, poor little guy! I totally understand what you are saying, it sounds like you just want everything to be better

I hope they get better soon and they figure everything out!

mrshowdy · #7 July 16th, 2007, 07:17 AM

it used to be, I just wanted to survive the "1st year", that they told me would be it

But now, its been almost double that, and I'm starting to really wear down.

He had lots of diarrhea the last couple days, TMI, with chunks of tissue in it.

That made me cry last night, it just made the fact that they cut up the inside of his stomach more real

Soap Lady · #8 July 17th, 2007, 04:50 AM

HUGS for you, Liz!!! When will you get the biopsy results? I do hope there are some clues there as to what is going on. It's awful to see your little one suffering, but even worse when you don't know what's wrong. If there is anything at all that I can do for you, please let me know!

mrshowdy · #9 July 17th, 2007, 06:07 AM

I'm supposed to call my GI nurse tomorrow. Hopefully she will have some answers for me

rachelwilber · #10 July 17th, 2007, 06:58 AM

I really hope you guys figure stuff out! I understand being scared and upset! I kept telling myself it will be over at 7 mths then at one year now at 14 mths and he still seems in pain I don't know what to do. I am so scared about this procedure... I don't want him to wake up with out me. HUGS we will get thru this together. Promise!

mrshowdy · #11 July 17th, 2007, 07:27 AM

Just know that most likely he will be screaming and really disoriented after the procedure. and BRING HIS REFLUX MEDS WITH YOU!!!!!!!

yeah, I didnt and it made it worse for him. And I definately recommend you give him the "take the edge off" meds. I wish I could remember what it was called. I'll ask the nurse tomorrow. It really helped him not be scared going into the OR. and I really think his barney and blanket helped.

I hope that my account didnt scare you, I just want you to know what to expect.

rachelwilber · #12 July 17th, 2007, 10:21 AM

Oh no your account didn't scare me. My neice had the same thing done and her mom is making it bad. It isn't you. I need to know what is going to happen so I can better prepare myself and Connor.

Thank you
Rachel

Linz · #13 July 17th, 2007, 11:11 AM

((hugs)) Keep us posted. Hope you get some clear answers soon.

mrshowdy · #14 July 17th, 2007, 11:30 AM

I'm glad to help rachel, I actually called the GI nurse today and left a message, hopefully I'll get a call back from her.

she knows I have no patience, so hopefully they have some answers

rachna · #15 July 17th, 2007, 05:31 PM

I hate waiting for drs to call back. it always seems to take forever! Keep us posted

mrshowdy · #16 July 18th, 2007, 06:27 AM

she called me back last night, but they still had no results, said she should get them today and will call as soon as she has them, or if they show something, she has to find the Dr first and see what he wants to do

brandy267 · #17 July 20th, 2007, 05:36 AM

any news yet?

mrshowdy · #18 July 20th, 2007, 12:00 PM

He has "healing" irritation.

they are hoping it will get better with the higher dose of meds, but we have now been told he will be on meds for the rest of his life, and that they will most likely have to put him on a new med when he turns 2 that have really bad side effects. I'm not supposed to be on here at work, but thats what i know so far

thanks for all the thoughts

rachna · #19 July 20th, 2007, 05:33 PM

Quote:

He has "healing" irritation.

they are hoping it will get better with the higher dose of meds, but we have now been told he will be on meds for the rest of his life, and that they will most likely have to put him on a new med when he turns 2 that have really bad side effects. I'm not supposed to be on here at work, but thats what i know so far

thanks for all the thoughts[/b]

ugh thats not happy

I hope they are wrong! They so often say things that turn out not to be true.

Soap Lady · #20 July 21st, 2007, 05:13 AM

Quote:

He has "healing" irritation.

they are hoping it will get better with the higher dose of meds, but we have now been told he will be on meds for the rest of his life, and that they will most likely have to put him on a new med when he turns 2 that have really bad side effects. I'm not supposed to be on here at work, but thats what i know so far

thanks for all the thoughts[/b]

Wow, Liz. You are dealing with so much right now. Does this mean that he has another digestive disorder in addition to GERD? I will be praying for you and your son.