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I have been diagnosed with PLF. My son is now 7 weeks old and after countless visits with doctors, nurses, and several different LC I was finially able to see the only doc in my area who specializes in breastfeeding problems. She did a full panel of blood work and said that I do not produce enough prolactin hormone. You name it and I have tried it. Here is a list of things I have tried or am trying now.
Pumping before and after every feed
I am now on 120 mg of Domperidone per day. This is the largest dose that can be taken in a 24hr period. For a while it seemed to be working but now my milk supply seems to be going down. I see my doc again on Monday and was just wondering if there is anything else I can try. He has a great latch, he perefers breast to bottle most of the time, I am still feeding on demand and he is eating every 2 to 3 hrs. He is taking about 2 oz of formula after every feed. I would never have started him on formula but he lost more than 10% of his weight and (except for the meconium) did not have a bm until he was 10 days old. When I pump I never get more than a tablespoon of milk, I have never been engorged and I have never leaked. If anyone has any other advise or anything else I can try I would be happy for the help.
"While we try to teach our children all about life, our children teach us what life is all about."
Im so sorry youre having such trouble, it sounds like you're doing all the right things & the fenugreek & domperidone would have been my suggestion as well.
Did they give any indication of WHY you dont produce enough prolactin? I haven't heard of that, so unfortunately I can't give much advice in the way of htat, but my neighbor is a LC so I'll see if she has any fresh ideas.
I would encourage though to check out the sticky titled 3 day nursing sabbatical. I'm not sure how much it will help, but it shoudl help some & it surely can't hurt. I would also encourage that even when you think you're not producing much, to continue to let him nurse his little heart out if he's content. There's no such thing as him nursing too much - if he does it for comfort that will only help b/c thats going to be the single best way to try to get your supply up.
Also - check out the website for Dr. Jack Newman. He allows peopel to contact him through his site & personally responds to each & every inquiry from what I understand. Send him an email or if you can find a phone number, call. Hes one of the biggest experts on BFing, and hes also in Canada, so that would be a HUGE resource. ANd if you're not already involved in La Leche League, you may want to get involved to see if you can find another woman with a similar experience & gain some insight that way.
Hang in there Youre doing what you can and you should be VERY proud of yourself for being so willing to do all this. This effort won't be wasted and it's never a lost cause Every single ounce you give your baby is valuable!
Oh, I wanted to add - although it may seem like you have a dip in supply - it could be a 6 week growth spurt hitting a little late 10% birth weight isnt that bad 5 - 7% is more standard though, and meconium poops are generally all you get for a good week sometimes. What also really counts is the total # of wet/poopy diapers (1 per day of life for the first week, so at 3 days old, only 3 wet diapers (or poopy & meconium counts) and after a week, 5 - 6 wet/poopy diapers a day.)
i haven't been diagnosed with this but am dealing with a similar problem. be glad that you are able to find a doctor who will prescribe domperidone! i am starting on it today. we are unable to nurse for medical reasons, but i am only pumping like .5-1 oz every 3 hours, we'll see how i do on the dom. i'm going to start on 10 mg 3x/day. good luck to you and i hope it is getting better!
sometimes i have a glass of wine in the evenings, do you know if this is still safe?