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Traci and I are good friends. I will be receiving regular updates while Joey is in the hospital if anyone wants to keep up with his status.
For those who aren't familiar with the story, Joey has Langerhans Cell Histiocytosis (LCH). LCH is a rare disease that affects 1 in 200,000 people--76% of those are children. LCH is not a cancer, but acts like a cancer, and is treated like a cancer. Joey has been receiving chemo since he was 6 months old. He has at least 8 months to a year left of IV chemo now that he has relapsed and will likely have oral chemo after that.
Thank you, all of you. While I rarely post here anymore (no time) I still read when I can. I do appreciate the thoughts and prayers as we start this battle again.
To say we are sad, hurt, and angry is an understatement. he had been No Active Disease for 6 months and May 21 was supposed to be his last IV chemo... 501 days after it had began. To learn that we had to start again, go on to a 4th treatment has shaken the very core of our family.
We have cancelled all our summer field trips, deciding instead to take a break from school from this point until we again achieve No Active Disease. Melanie is not thrilled with this but David was ready for a break anyways.
A group called Kristie's Foundation is stepping in to assist in making memories... just in case. Thats the part I try not to think about, the just in case. I can't even say it out loud but its in my head... the what ifs.