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I feel like I have a bubble baby :(


Forum: Children With Asthma

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  #1  
September 16th, 2010, 05:40 PM
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Brady will be 2 in November. I know this is going to be long. I want to thank whoever can keep up! lol .. I think I finally have to get everything written down instead of just talking about it. I've been completely stressed about Brady's health. I can't sleep at night. I always worry, etc! I have a feeling he is going to be one of those bubble babies that can't even leave the house. lol So.. here goes..

Since September of last year Brady has been sick about a million and ten times. My son started school last year and it seems that's when all the sicknesses came home. He's had over 20 ear infections. One ear infection lasted MONTHS until he got tubes in. He is still getting so many ear infections even with the tubes in. He isn't talking. The only things he will say is dada, oh wow and cheese.. Yep, cheese! Not even mama! lol I figured atleast he would say drink or something by now. We had his hearing check in the spring and it was fine. Anyway, besides the ear infections, he's had so many colds and flus. It seems like it's a once a month thing almost. Maybe you will understand why I worry too much after this...

It was April 30th. My husbands birthday. It was also the day of my daughters kindergarten meet. Brady was sick.. as always. My brother watched him for me. I had taken him to a new dr the day before (I got sick of the other dr. He was never open, was too old fashion, didn't listen etc!). The new dr told me it was just a cold. Just like they always seem to do and then sent me on my way. So anyway, yeah the next day my brother was watching him. When I came to pick him up he was sleeping. I was going to leave him there (We live 10 mins apart) but then he woke up. He wasn't sleeping much these days. I went to change his diaper and that's when I noticed how he was breathing through his ribs. I really thought I should bring him to the dr.. but then part of me thought that they already think i'm a hypocondriac (sp?) as it is. Buuut my brother insisted and even said he'd watch the other two kids while I went down. The dr's office was only 3 mins away. So, we're driving there and i'm so worried. I walk in and say that I didn't have an appt but I am scared by the way he was breathing. I get into a room. A nurse takes his temp which was 103 (if I remember correctly) it wasn't so high for a baby they said. As she walks out and Brady and I are waiting. Brady started acting tired. He wasn't holding his head up. All of a sudden he starts to shake so bad. I look at him and he stopped breathing! It took me a second thinking "omg omg what do I do?!' well, I run out of the room and yell to the nurse who runs in to the dr. He was starting to turn blue. Another dr came in and did CPR on him. The other people were looking for the right size mask for oxagen. That's right.. they didn't have the right size mask and the dr's were mad at the nurses. That's when everyone in the hospital was sent out to wait (meaning patients) and every single person was in Brady's room. I'm crying and freaking out. His pulse or whatever that finger thing was so low. They called the ambulance and it took them a half hour. After so many attempts at cpr they got him breathing okay but he was still laying there looking so white.

What I find weird about this is how... 1. I never called for an appt. I just raced there. It's so weird that I had just changed to this small hospital just a week before. If I drove somewhere else he wouldn't have made it. That's exactly what they said.

2. While I was waiting in waiting room before this happened, my husband texted me and asked if he should come. Usually I will just tell him no, just get the kids. But I told him yes, come. He came just as the ambulance came. He was confused and worried.. esp when one said "your baby is going to be okay, don't worry!"

We get to the hospital and he has a breathing treatment and then goes home. Yep.. went right home. Can you believe you can go right home even after you almost died? 2 days later I had an appt with the dr that saved Brady's life. He still could hear things in his chest. He kept wanting to see him every day and it was still the same. Finally someone came over and set up a nebulizer for the house. We did this 4 times a day. We also had an appt with a specialist who said he has asthma. The dr's not only think he has asthma. But the reason he stopped breathing was because his fever wasn't high but it spiked so fast. I remember holding him and he got hotter and hotter. This is what caused him to have a seizure. The reason he stopped breathing was because of the asthma and croup. I don't know how many times i've told dr's that he's had croup. I know atleast 2 other times that he had it but nothing was done. The day before was just a cold.. remember? That dr said she was so sorry. I sent a card to the hospital to thank them all for saving my babies life.

FAST FORWARD TO TODAY: From April-now he's had a zillion ear infections. Colds and flu here and there. Just last month was his last ear infection. 2 medications did not work which made me go back again on Monday for a different medication. Sunday night he started to wheeze and act like he did back in April. Thank god I had his emergency inhaler. He has croup AGAIN! .. He is now on prednisone and something else for ear infection. I can't remember. We've been through so many including bactrim, the pink stuff etc! Tonight as we were laying together, I can still feel the stuff in his chest. I KNOW why he got sick. Kids are back in school.. BUT... on Saturday we had Emily's Birthday Party. My friends 17 month old bit Brady. He has a huge bruise and teeth marks on his arm. Her son was mad that Brady had a car. I think from being around so many kids he got sick again. This is what woke him up at 3am Monday morning all sick.

LAST THING... I don't want to be one of those moms. I don't want to seem like a hypocondriac. As it is, i'm scared to go to the dr because they will think I am over reacting. My other kids never got sick like this. I don't want to have anymore bday parties or him being around so many kids anymore. Am I overreacting? I seriously think I am depressed over this. How is he going to be in school? Is anyone else dealing with asthma? Is he ALWAYS going to be this sick? I know he must think that ear infections are normal. He doesn't even cry with ear infections anymore. The only way I can tell he has one is because he will grind his fist in his ear. That's his sign.

I'm so glad I got this out. I hope I can reach out to other moms. Maybe someone else has been through this. Maybe someone can tell me i'm overreacting. I just don't know what to do anymore.
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  #2  
September 16th, 2010, 08:18 PM
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I am so sorry that you have been through all of this.
I would wonder if part of his speech delay isn't from the ear infections. Even with good hearing it would make things sound funny to him all that fluid.
My son has asthma. He used to get bronchitis 4-6 times a winter (so Oct through Feb). I felt like we were always at the dr. Now he takes singular once a day and last year for the first time he didn't get so bad, just a little cold. The other thing is we have a nebulizer at home. So whenever he shows signs of a cold we start doing treatments at night and in the morning to help clear his lungs and help him get better. He has a rescue inhaler since we had an asthma attack last winter but we don't use that too often. One thing I would ask about is a nebulizer at home. Then as soon as he starts to sniffle or cough do a couple treatments a day. It will make a big difference. Ear infections can go away on their own if you want to give him a break from the antibiotics. When we do have to have antibiotics we ask for Zythromax. Its 5 days, once a day. Much easier to not miss a dose. Being around sick kids is a concern and I would bring it up to the dr that every time he is exposed to crowds of people he gets sick. Sounds like maybe his immune system needs a boost and maybe they have a resource or avenue to help with that.
I hope this helps some. Please know we are here if you have any questions about meds, treatments, reactions. Just pop in . Welcome to Children with Asthma.
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  #3  
September 25th, 2010, 10:45 AM
Adriana's Mommy's Avatar I <3 my kids
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Hang in there. My son has been dealing with Asthma (and other stuff) since he was 3 months old..
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Last edited by Adriana's Mommy; October 20th, 2010 at 10:44 PM.
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  #4  
September 25th, 2010, 02:43 PM
JessP's Avatar Lovin life and family
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How are things going Kristy?
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  #5  
October 11th, 2010, 06:34 AM
The Heather's Avatar Jedi Master of Piffleness
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Dropping in from the March 08 PR. It must be very difficult to have a child who gets sick so frequently. I don't think you should ever feel bad for bringing him in to see the doctor. Trust your instincts.
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  #6  
October 11th, 2010, 02:04 PM
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I'm also dropping in from the March 08 PR. Oh my goodness!! That must've been so scary! When my ds started day care for the 1st time (right before he turned 2) he was sick allll the time. I was so tired of them telling me nothing was wrong! They made me feel bad for bringing him in all the time. I hope he's doing better.
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asthma , cpr , depressed , ear infections , sick

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