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This is my first time posting on the asthma board, but I'm starting to feel a little uneasy about my daughter's health and I need a bit of advice.
So a little history: I have asthma, dh has asthma, my mom and grandma and brother all have asthma. I have cough-variant asthma. So usually my asthma is triggered by a cold. Since I was little, I usually end up on prednisone when I get a cold, or I'll end up with a cough that doesn't go away. Now it seems my 8 month old is in a similar situation.
About a month ago, we all got a cold. DH and I recovered rather quickly, as we were put on advair. So our cough and difficulty breathing went away within a few days of taking it.
I noticed my daughter started coughing and the cough subsided, but she is continuing to have coughing fits every single night. The doc said there is no way of diagnosing asthma in a baby this young, but she gave me albuterol to give her, along with an aerochamber fit for a young child/toddler. The doc wanted to see if my little one would respond, given our family history.
Well, it looks like she is responding very well. When she has these fits, I give her the albuterol and she doesn't have another attack for the rest of the night.
The problem is, I have to give it to her every night, because she has these attacks every night. I spoke with a nurse at a pulmonology office and she said that it sounds like my daughter needs something stronger. But my doctor got upset that I was taking matters into my own hands; even though my daughter responded to the albuterol, she still wants to run other tests to make sure it's not something else (before she sends us to a pulminologist).
I understand where the doc is coming from, but to me it seems like a waste of time to run other tests considering the fact that my daughter is responding to these meds. She also wants to do a chest x-ray, but previously warned me that she doesn't think it's that safe to do one on infants this young.
I'm really frustrated because I don't want my daughter to keep suffering every night. I literally recorded her coughing fit last night so I can show the doc the next time I see her. I just worry about waiting to see a specialist. Could this kind of cough damage her little lungs? Am I really wrong for wanting to see a pulmonologist, considering the circumstances??
I don't think it can damage her lungs (I am not a dr though). I would be upset that the dr is being so possessive. You are doing what you think is best for your daughter and getting a second opinion is never a bad thing. Poo on her for being that way. I would tell her your concerns and ask for the referral. If she won't give it than find a new dr. They won't diagnose asthma until 2-3 years old. The big thing for babies this time of year is RSV which can lead to other problems.
Is she having trouble during the day?
I know with my son he would get colds that would settle in his chest and then turn into bronchitis and others it turns into pneumonia. I would be pushy if you have to or feel the need. I am glad she is finding some relief from the albuterol. How long has she been on it? Sometimes it will take a week or so for the coughing to stop.
Welcome to the board and feel free to poke around, ask questions and let us know how she is doing.
Most Peds don't rush to diagnose asthma.. It took my little guy 4 months before he was diagnosed at 8 months old.. He was hospitalized at 4 months old for having broncholitis (needed oxygen to breath) and was put on Albuterol Neb, never really helped, then put on Singular granules, which didn't really help.. Then at 8 months he was put on Flovent.. He had constant coughing all day long and crackling in his chest.. I was at the doctors constantly.. And what made the Ped put him on Flovent was the wheezing in his chest, not the cough.. Only reason why he was diagnosed with Asthma was because when we stared the Flovent a week later his symptoms disappeared.
I would side with your Ped on this. Try all options before the steroids.. I'm not to thrilled about using a inhaled corticosteroid on my son.. I'm worried it will stunt his growth at such a young age.. He's already small as it is..
Have you talked to your Ped about starting Singular?
I would look into Pediatric Pluminologist as well. Especially at your daughters young age.. I'd be a little leary of specialist that don't specialize in children.
Last edited by Adriana's Mommy; January 23rd, 2011 at 10:47 PM.
Danny was diagnosed with RAD but treated as asthmatic from the time he was 8 months old. That was the first time we could finally get a referal to a specialist. He had croup at 2 months old and has never had the same set of lungs so to speak. He is now being strictly treated as asthmatic and after he started Advair about month ago he has been a different child. No chronic cough, no choking he is coughing so hard, occasional wheezing if he is running around and we have to use xopenex if he doesn't stop wheezing after about 30 minutes. I love that he is finally able to breathe. With your LO...I wouldn't worry too much about the CXR unless she isn't wheezing. If there is no wheezing than there is not really a reason she needs a CXR. As for the testing...what is she planning on testing for? If she doing bloodwork or just observational type stuff? Such as is she worse after she laughs a lot or if she gets excited and breathes faster? If it isn't something that will hurt your LO I would be fine with it just to rule out something else, but if she isn't wheezing and is 100% better with the meds she is on now...other than needing them every night...I would object to testing, get a referral, or find a new doctor that will give you a referal. I also would definitely try to find a ped pulmonologist if you can...if you can't than the one you called likely handles ped. asthma frequently... I really hope you guys get this figured out for your LO's sake...
This is my first time posting on this board (actually I didn't even know it existed until today), but like the other ladies said, they really won't label your child as having asthma so young. However, they may treat her symptoms as if she has asthma. That said giving her the meds she needs to breathe/survive generally will not hurt her. As for her doctor being upset with you, TOUGH for her! That’s YOUR child and YOU are her advocate. I would discuss my thoughts/feelings on the additional tests (what’s making her want additional tests? Is your daughter wheezing? Are there other symptoms?) and the timeframe YOU want to see them done. If she wants these tests done, why haven’t they been done/scheduled? If he/she continues to take issue with you researching/obtaining other opinions, I would DEFINITELY find another pediatrician.
My lil guy, who's 3, has been having this issue since he was 4 months old. He started out with the chamber and an asthma pump, added liquid albuterol & a decongestant/cough suppressant, a few months later added the singulair granules (you mix it with formula/juice/applesauce), and finally, at 1 year old, a nebulizer breathing machine.
Currently, his "asthma" episodes are triggered by any respiratory virus/infection. I also notice symptoms if he's been running particularly hard. During the winter months, he's sure to be on the neb at least once a day for preventative purposes. When he's sick, he's on it up to 4 times a day (usually just the albuterol inhalant, but sometimes adding the pulmicort inhalant), his liquid meds 3 times a day (and during an illness we add amoxicillin to the other liquid meds), and the singulair once at night. There are times when we do have to switch from the decongestant/cough suppressant to prednisone. He's also more susceptible to pneumonia (which he had twice in 2010).
I think you and your daughter will be fine. You will begin to note her symptoms and you'll begin to pick up on her signs. At this point in my son's life, I keep all his meds on hand. I know when we're headed to an episode and I can begin to start him on whatever meds depending on his symptoms.