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We are still pretty much stuck. We are waiting for our appt with our new GI on 4/25 and we are waiting for a hematology/oncology referal (to watch for leukemia and monitor blood counts as part of the disorder he has) and waiting on the referral for Cincinnati Children's which specializes in treating the disorder he has. He still isn't really eating much, defnintely not what he needs to grow, but apparently just barely enough to maintain his weight. :/ It takes half the calories it would to grow to maintain his weight. Aka....he needs 1550 calories per day to gain weight and grow...but he needs 775 to maintain his weight. He averages around 750.