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Danny is doing pretty well overall. We had to submit another stool test today to see if his enzyme supplements are working well enough. We are also still waiting on hematology to set up an appointment and waiting to hear anything about he referral to cincinnati. This is turning into a waiting nightmare. It took 2 months for me to get fed up with the GI enough to ask the ped to do the referrals (actually I went in to have Danny's chart flagged and they requested to do the referrals) but it has been a month and STILL no news....
Thankfully breathing wise we have been doing quite well recently. There were a few times I was quite tempted to give Danny a neb treatment because he was wheezing after running around or crying but decided to wait 30 minutes for it to calm down. If it got worse I would do one immediately anyway....but he winded up doing okay after about 20 minutes so we didn't need it.
My doc ordered a 30 day event monitor for my heart on Friday and it should be here tomorrow which means that I will have to wear it for at least the first 2 days at disney world. Not cool... Anyway...that's about it here.
We stopped Nathan's nebs on Saturday. Last night (Tuesday) he woke up at 4am and 7am in coughing fits which, thankfully, didn't last longer than a few minutes! Today he has quite a bark on him and a clear runny nose.
I don't know if it's asthma he has or not but this boy sure is sick a lot!
Glad Danny is sick per say but sorry he is waiting so long for the care he needs. No fun wearing a heart monitor to Disney World but enjoy the trip .
Sorry to hear Nathan is so sick. I would keep up the neb treatments until he is fully better. Sounds like he is still fighting that cold poor guy.
Jeremy is getting the start of a cold so we started treatment. Hopefully we caught it quickly. We found out yesterday at our anatomy scan we are having another girl so we are super excited about that. Otherwise not much going on here.