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Not the way I planned on waking up yesterday. Sinus infections send his asthma into a tailspin...starting with a cough is just NOT GOOD! We started Xopenex nebs every 3 hours immediately and that did "okay" but he was still coughing at least once per minute. Last night the on call said to go ahead and start the oral steroids and up the nebs to every 2 hours and to call the office by 10 am if he wasn't "significantly better." Today he wasn't much better at all. We got the nebs down to every 3 hours but it is clockwork. At about 2 hours and 30 minutes he starts coughing more than once every 3 minutes and by the 3 hours mark it is every minute again... We can't get in to see his regular allergy/asthma doctor until tomorrow at 8:30 am but that is fine. Seeing his regular doctor is better than getting in sooner to someone that isn't familiar with all of his issues... He told us to go ahead and start the cough suppressant tonight and up the nebs back to every 2 hours if his cough doesn't get better (no closer than every 3 minutes before doing another neb.) I am so tired of this being the best he can be if you know what I mean. There has got to be something that will help him feel better and not get so sick so quick with hardly a trigger at all!
Sometimes...I don't manage...I just force my way through the day. :/ His breathing is doing better but we are facing a possible permanent feeding tube being placed soon. :/ He is finally down to nebs every 4 hours and had his last dose of extended steroids today. He started a second round of antibiotics Monday too. Hopefully this will get him over this hump and get his lungs back to at least "his" normal.