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My dr. appointment today


Forum: Autoimmune Diseases and Disorders

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  #1  
April 8th, 2008, 12:35 PM
::er!ca::'s Avatar Platinum Supermommy
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I saw my rheumatologist today. I had a ton of questions, he answered most of them. Others he said he couldn't answer until after I delivered the baby and saw what path my symptoms were leading now.

Out of the blue, he said "Have I given you a pamphlet oh fibromyalgia?" I said, "Umm, no, should you have?"

Apparently that is the road we are going down now.....

I go back July 1st.
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  #2  
April 8th, 2008, 01:16 PM
Becca's_Mommy's Avatar Becca's Mommy
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So does he think you have Firbo only now, or in addition? My Rheumy has mentioned Fibro to me since I have pain in some areas that are not effected by AS.

Glad your appointment went well.
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  #3  
April 8th, 2008, 01:49 PM
::er!ca::'s Avatar Platinum Supermommy
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In addition. Sorry, Brinlee was yelling and I didn't have to to type everything out.

He also said he doesn't want to rule out AS... but we aren't going down that path right now. He wants to keep an eye on how things progress after I deliver the baby, especially since I have the gene (assuming he's talking about the HLA-B27).

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  #4  
April 8th, 2008, 02:03 PM
Becca's_Mommy's Avatar Becca's Mommy
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What "progression" is he looking for? Is he going to start you on any of the new Biologics? What meds are you taking right now.
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  #5  
April 8th, 2008, 02:45 PM
::er!ca::'s Avatar Platinum Supermommy
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Sorry, progress was my term. He wants to see how things are after I'm pregnant, he said sometimes pregnancy can hide symptoms and other times pregnancy can make them worse. So, when I'm not pregnant, he wants to see how things are. He wants to compare x-rays to see if anything is getting worse. He's only done one set of x-rays when I first started seeing him last summer, then I got pregnant... he wants something to compare to, to see if there are any changes.

As far as medications go after pregnancy, he said he has a few things in mind. We'll talk in greater detail on July 1st when I go back to see him. Brinlee was a big chatter-box today (DH had to work so I had to take her with me) and it was hard to get every bit of information when I was trying to get her to be quiet so I could listen! He did say it would depend on it I were breastfeeding or not. He said that if he wouldn't feel comfortable giving it to his pregnant or breastfeeding wife, he wouldn't feel comfortable giving it to me. I plan on breastfeeding, so we'll see how it goes. If breastfeeding doesn't work out, then maybe there will be a new approach? I don't know.

Medications right now... I have a prescription for Lidoderm patches (have used a few times during pregnany-- I swear they give me crazy dreams at night) and Medrol (ended that series right before I got pregnant), but I pretty much refuse to take medications when I'm pregnant unless I'm laying there and can't move an inch. I know, I'm stubborn... and I need to take care of myself too.... It just scares me! Even if things are proven to be safe to take during pregnancy, I still feel weird about doing it. So, I just "deal" with it and complain to my DH

I knew I was prescribed a corticosteriod, though for some reason I was thinking it was prednisone... I looked at the bottle and it was Medrol. I guess my brain was in a fog, since I haven't touched it since the end of Sept./beginning of Oct.
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  #6  
April 8th, 2008, 02:50 PM
::er!ca::'s Avatar Platinum Supermommy
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Wanted to add, I do have some papers that have stretches/small exercises that he said I could do... but to be careful since I am pregnant. Not that stretching or light exercises would hurt someone during pregnancy, but he doesn't want me to over do it and end up in more pain that I already am. I'll admit that I don't do them regularly like I should.... I need to get on the ball.

He did mention a low-impact aerobic exercise program after I have the baby. I'm hoping to get into a water aerobic program... I think I would like that. But we'll see what is available and what I can afford. I'm wondering if there is something that can be through doctor recommended physical therapy and our insurance company could be billed? Or if this is something I'm going to have to do on my own time and with my own money. Anyone have any experience in this?
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  #7  
April 8th, 2008, 05:38 PM
Becca's_Mommy's Avatar Becca's Mommy
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I think Medrol and prednisone are pretty much the same. I am not sure the effects on pregnancy though. My OB never gave me any steriods. She only recommended NSAIDs until 3rd trimester and then physical therapy and small amounts of pain meds. I took a half a 5 mg hydrocodone on bad days and took it easy a lot.

I would definately check with your insurance on the gym membership! Wouldnt that be great!

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