We pride ourselves on having the friendliest
and most welcoming forums for moms and moms to be! Please take a moment
for free so you can be a part of our growing community of mothers.
If you have any problems registering please drop an email to email@example.com.
Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!
So my 9 month old decided to wean himself a little earlier than planned and since that was the one thing we were waiting on to start treatment for my lupus, I have my prescription for Plaquenil patiently waiting in my medicine cabinet. Before I start taking it, I am wondering if anyone who has been on it has any tips or personal experiences with the drug they would like to share. My doctor said to expect a little queasiness, but nothing awful.
I had no side effects at all from the plaquenil. It really helped with the inflammation in the long run. I have a sister, however, who had digestive issues the whole time she was on it and hated it. The tough thing about drugs is everyone reacts differently. I hope that you get no side effects! But if you do, remember that a lot of times they will go away within a week or two as your body adjusts. Good luck!
I was on plaquenil for about 1/2 a year, and didn't experience any side effects from it (except I thought a skin rash may have been a result of it, but it turns out it's just from the Sjogren's itself), but I found in my case it didn't do anything for the fatigue or the joint pain.
I've taken Plaquenil. My doctor said I could take it all at once at bedtime, which is what I did, because for whatever reason it made me tired. My rheumy said that was fairly unusual, but I didn't mind. I slept BEAUTIFULLY when I was on that stuff.
I had quite a bad reaction to it. It gave me horrid diarrhea and constant vomiting. I had to get IV fluids at one stage. Apparently some gastrointestinal aggravation is common but the extent of mine was unexpected.
Jen + Matt
Parents to Sophie, the Wondergirl Asperger's Syndrome
GERD & Constipation
@ Celena - I actually had to go on plaquenil for the first time when I was pregnant because my autoimmune disease was attacking the placenta. I had a ton of bizarre symptoms (ex: deep muscle itching, extreme nausea and vomiting) but it was hard to tell if was the plaquenil, the hormones I had to take, or the pregnancy. Overall, the plaquenil allowed me to have a beautiful healthy baby girl and I only had to take it for a few months of my pregnancy.
Now that she's 15 months I'm debating starting taking it again. I have vitiligo (skin pigment autoimmune), fibromyalgia (only since post-partum), and another autoimmune disease that is undiagnosed for now other than possible lupus.
I'm also debating if I want to attempt to get pregnant again or if it's just too much. Any input?