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I thought I'd pop in and introduce myself. I've just been diagnosed with Graves disease and I'm expecting my first child in June. I found out in March 2010 that my thyroid was overactive while at a psychiatric hospital for the second time in my life. I never went to an endocrinologist because I was anorexic and convinced myself that fixing my thyroid would result in weight gain. My psychiatrist refused to see me anymore because I wouldn't get my thyroid checked out.
I slowly recovered from anorexia without medication and got pregnant despite being told that it was near impossible for me (I had a very complicated appendix operation when I was 5 and almost died-- they had to remove an ovary and I think a tube because the appendix ruptured and infected the ovary). I ended up getting terrible hyperemesis gravidarum which they think was caused by my overactive thyroid and I ended up in the hospital twice with dehydration. The endocrinologist put me on PTU after my second hospital stay. I was told that my TSH was less than 0.0001. They sent me to a high risk pregnancy specialist who switched me to Tapazole (Methimazole) because apparently I have a lot of liver damage and PTU affects the liver more than Tapazole.
So now I'm getting help for my thyroid and I get ultrasounds every 3 weeks to monitor the baby's thyroid. I keep hearing about all the complications that can occur and it's really scaring me. It's scary enough that this is my first child, but adding on finding out that I have an autoimmune illness makes it so much worse. I've been told that my thyroid levels are much better and that it's getting better with pregnancy but I have to say that I don't really feel that great.
I'm also worried about breastfeeding on Tapazole. I've heard that PTU is safer but that some more recent studies suggest that they are about equal in safety.
Anyway, hearing anyone's experience with Graves and pregnancy would be very helpful. I feel pretty alone in all this.