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Forum: Autoimmune Diseases and Disorders

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  #1  
June 24th, 2011, 04:31 PM
EmG EmG is offline
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So my youngest son has been having unexplained fevers for the last 3 months. They happen a few times a week. Sometimes he feels yucky, and other times, I notice because he's near me and burning up. Also with these fevers, the glands in his neck swell. I finally took him to the doctor a couple of days ago. He had had a bad case of influenza the end of January and I was hoping it was because of that. His doc said usually that would only be for a month or two after the illness. She did a bunch of labwork and a TB test. She did an ANA, CRP, CBC, CMP and checked for the EBvirus. Everything came back normal. I was really hoping that the EBvirus would come back abnormal. His doc is concerned because with my lupus I have never had an elevated ANA or CRP, but I have had a kidney biopsy which proved the lupus.

I now have to keep a log of his fevers and what kinds of activity he was doing before hand. She said that if it looks like he gets the fevers after he does a lot of activity, or being out in the sun/heat that that means his immune system is compromised prior to the activity. And we will have to watch him as time goes on.

I wasn't expecting that at the appointment and now I don't even know how to react. I would feel awful if my son ends up having an autoimmune disease. Especially since he is so young. I didn't start getting sick until I was 23.
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  #2  
June 24th, 2011, 08:25 PM
amberjolie's Avatar Super Mommy
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Location: Ontario
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I'm so sorry your son is going through this right now.

Hopefully there's a better explanation for his symptoms, but if it is auto-immune, hopefully they can figure it out soon so they can at least start figuring out a possible treatment for the symptoms.

I wish there was something more uplifting I could say. My thoughts are with you and your son.
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  #3  
June 26th, 2011, 07:01 PM
MauMama's Avatar formerly La_Sirena
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I'm so sorry your little one has been so ill.

Have you and your doctor looked into autoinflammatory illnesses like FMF or TRAPS? I was clinically diagnosed with TRAPS because of the recurrent fevers I get. My daughter gets them as well. They are quite rare, unless you are from certain ethnic backgrounds, but they are actually becoming quite a common find in families.

I would be wanting to know that his lymph system is doing ok, even to the point of getting a scan. I would want every stone unturned because I know how awful it is to have such a sick kid so often.

Keep a fever log as well as a symptom log. Log things like headaches, light sensitivites, joint pains, etc.

It has been a loooooong process for us.
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  #4  
June 26th, 2011, 08:10 PM
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It's weird because my oldest has gone thru periods of that as well, not as much since he's gotten older pediatrician never investigated it as much as I questioned it.

It's good to know you have a good team on your side who WILL and ARE investigating it! Please keep us posted, I'm praying it is something simple and very managable... nothing is worse than being a parent trying to watch our babies go thru an illness or something uneplainable... they're so amazing and rezliant smiling thru it all in spite of how they feel
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  #5  
June 28th, 2011, 12:08 PM
EmG EmG is offline
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Quote:
Originally Posted by MauMama View Post
I would be wanting to know that his lymph system is doing ok, even to the point of getting a scan. I would want every stone unturned because I know how awful it is to have such a sick kid so often.

Keep a fever log as well as a symptom log. Log things like headaches, light sensitivites, joint pains, etc.

It has been a loooooong process for us.
I have started his fever log. He also has light sensitivities. He has never complained of joint pain that I am aware of. But I am keeping a log of everything that happens until his next visit.
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