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I'd like to get more active on the boards. I'm so tired lately that my mind just blaahs and I forget about things.
I'm Jen, 30, mum to Sophie (recently diagnosed with Asperger's Syndrome, anxiety and some sensory issues) and married to Matt (also diagnosed with AS).
I've had the autoimmune thing for a while now but always just shrugged it off. I was always the sicker of the two (my brother) and if someone got sick I was always worse and with complications (like pneumonia).
It wasn't until I began having miscarriages that things started seeming off. I've had just about every test on the planet and nothing is ever abnormal. I will have a blood test, be sitting in the office with a huge inflamed joint and the dr will tell me, nope -- nothing is elevated!
Soph started developing fevers as a baby and I started to notice I was getting fevers too, along with the joint pain and it was with the loss of my twins in 07 that things came to a head.
I was on high doses of prednisone for a few years but am managing on 5mg at the moment. I'm actually having a good winter, not really sore at all most days, which, of course, makes me want to try and get pg again.
Nevermind what happens if I miscarry again or post-birth.
It seems never-ending for us.
Jen + Matt
Parents to Sophie, the Wondergirl Asperger's Syndrome
GERD & Constipation