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Updates on Colee


Forum: Autoimmune Diseases and Disorders

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  #1  
March 7th, 2007, 08:29 PM
stormy's Avatar Mega Super Mommy
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I am going to try to get this sticky. Please include all updates on Colee in here.
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  #2  
March 8th, 2007, 05:26 AM
stormy's Avatar Mega Super Mommy
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Here is the email that was sent to Janetta. I hope it was okay to do this.



Here's what it said....

"Yesterday morning when I went to her house she was
doubled over in pain. She had trouble walking. I had
her go upstairs to take a warm bath to see if that
wouldn't help relive some pain. We were taking the
kids in for an appointment so the doc could take a
look at her. (We had a call in to her GI just in case
this was a GI problem).

We got there, kids were checked (they are ok) and
Nichole mentioned the stomach pain. The nurse came in
to do vitals and Nichole told her she thought she was
having a nervous break down (HELLO!! SOME HELP PLEASE)
The nurse blew it off as "Stay at home mom" is a hard
job. I interjected.. She was having problems. The
nurse wrote something in the file and off she went.
When the doctor came in again Nichole said she felt
like she was going crazy... The doc blew it off like
it was a simple kids are hyper kinda remark.

Nichole took the kids out to the van and I checked
them out. When I got to the van she was crying and
very upset that another doctor had failed her and no
one cared. She was very emotional and was literally
screaming for some help. I told her I WOULD CALL and
someone WOULD listen.

I called her therapist and told them who I was and
Nichole was in the room aware I was making the call.
She told me to call a crisis line which I did. We went
out here lots of waiting... finally got to speak with
an intake lady. The interview was almost 2 hours. She
had Nichole very upset with all the stuff they went
through. I think they were trying to see what level
her agitation was at.

They then had to meet with a supervisor to decide what
the next step was... They ended up calling an
ambulance to take her directly to the local
hospital/ER. They did tell us at that point she would
be admitted. They needed to follow up with this
"pain". We told them her doc thought it was her gall
bladder and was going to schedule a sonogram.

Well... they ended up doing a cat scan. They have
found that there is "free air" that should not be
there. She is VERY HIGH RISK of her colon rupturing.
They are not sure if they are doing surgery or not.
They are still waiting for her GI to get there to do
more tests. At first they thought the colon had
perforated but that is not the case. They are treating
her with antibiotics.. also she has a bladder
infection.

If they are going to do surgery she is hoping to be
able to get transferred to a bigger hospital 45 miles
from here... All of that is up in the air. I really
don't know what exactly is going on.

Her mental health....

She is very scared and extremely agaitated. She has
been telling doc's of have having a fever for three
weeks... when she started having UC problems her GI
did not see her only prescribed more prednisone. This
is all such a mess and I do apologize for rambling. so
much is going on and I am trying to get it all in.

Her doc she saw yesterday called me early this a.m.
before seeing Nichole in the ER (14 hrs there before
going to intensive care). He was almost in tears on
the phone when he learned she had such a break down.
He did go in and talk with her at great length and
telling her how badly he felt. He has taken full
responsibility for her care at the hospital.

So in a nut shell... She is in a regular hospital.
Right now they are more concerned about her physical
health although they are keeping watch on her mental
health.

As I have details I will be in touch. She does not
have a phone in intensive care."

I'll keep y'all posted as I hear more from her.
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  #3  
March 8th, 2007, 09:11 AM
texasmomof2
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Thanks Stormy for making this a sticky! It's so very important!!!!

I just got another e-mail from her mom that Nichole was moved to a regular room, so she is out of ICU and now the kids can see her. They are watching her vitals because they are worried about her colon perforating. They are mostly worried about her physical health right now, but still a little worried about her mental health. Mentally she is quite down.

That's all I know for now, but will keep you posted!!
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  #4  
March 8th, 2007, 10:12 AM
Lisadear's Avatar Platinum Supermommy
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Quote:
Thanks Stormy for making this a sticky! It's so very important!!!!

I just got another e-mail from her mom that Nichole was moved to a regular room, so she is out of ICU and now the kids can see her. They are watching her vitals because they are worried about her colon perforating. They are mostly worried about her physical health right now, but still a little worried about her mental health. Mentally she is quite down.

That's all I know for now, but will keep you posted!![/b]
thanks!

xxx Lisa xxx
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  #5  
March 8th, 2007, 03:53 PM
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Thanks Janetta. I am worry about her too. Being sick is enough to make you mentally sick. If you get to talk to her mom tell her I am thinking of them and keeping her in my prayers. I will be on and off tonight and I have to work tomorrow but I will try to check but can't reply back. The schools computer will let me see the forum but will not let me reply because of the blocking system it has. It considers it a forum/entertainment.
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  #6  
March 9th, 2007, 08:15 AM
texasmomof2
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Got a new e-mail today:

"Another update- Nichole finally was taken out of ICU
and moved to a regular floor. One other lady in the
room.

They definitely WILL NOT have to do surgery at this
time. I was there when the surgeon came in. He told
her at this time it was not an emergency. At sometime
in the future she will have to have her colon removed.
He explained "usually" at the ten year mark of having
UC.

They did not want to do a scope now because if the
colon wall was thin they could perforate it by doing
the scope. She had a scope scheduled on the 19th and
the doctor told her to keep that appointment.

She still feels very let down and failed by all the
doctors. They all really missed the boat when her care
is concerned. Last night the head of the Nord Center
(mental health facility-physcharist on duty) came in
to talk to her. He was all bent out of shape that she
came to them when she goes to another facility. Like
what the "H". We did call her therapist where she goes
and THEY told us to call this place. It appears to me
one hand does not know where the other is (like up
there #**).

Her primary physician was there this a.m. when I was
up there. He went on and on about pain management.
OK.... so what is she suppose to do. She has had HIM
treat her for migraines for several years. This man is
an EXCELLENT doctor who is very good (?). He says...
Would you like to go to a headache clinic? DAH YAH

I am so frustrated for her... No one has addressed her
mental health at all. When she first came into the ER
one lady told her not to worry this was not a huge
problem and it could be handled. Her physical health
overshadowed what is going on mentally and I can
appreciate that however your mental health is just as
important. We found some info on the net about
prednisone and manic depressive behaviors... HMMM
what has she been telling them and NO ONE has heard.

My poor Nichole.. My heart is just breaking for her.
She really is at the end of her rope.. At least on
this floor she can see her babies! Emily went up with
her daddy tonight and it was good for all three of
them.

Well I am really sorry to go on and on. This is the
first time I have had more than 10 minutes on the
computer and I wanted to give some insight to what is
going on.

Tell everyone she is ok... Still hanging in there.
Again thanks for the concern. "

Quote:
Thanks Janetta. I am worry about her too. Being sick is enough to make you mentally sick. If you get to talk to her mom tell her I am thinking of them and keeping her in my prayers. I will be on and off tonight and I have to work tomorrow but I will try to check but can't reply back. The schools computer will let me see the forum but will not let me reply because of the blocking system it has. It considers it a forum/entertainment. [/b]
Entertainment?? This is like therapy!!!!!! LOL
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  #7  
March 9th, 2007, 04:18 PM
~*Dina*~'s Avatar Platinum Supermommy
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Thanks for the updates!
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  #8  
March 9th, 2007, 07:49 PM
stormy's Avatar Mega Super Mommy
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Janette our blockage system for the school's computer is really bad. It blocks out everything and it comes up with these reasons which I think is really silly for blocking it out. It is not like I am doing something I am not supposed to be doing.
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