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Those with Fibromyalgia(sp?)


Forum: Autoimmune Diseases and Disorders

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  #1  
March 14th, 2007, 10:30 AM
Colee's Avatar Platinum Supermommy
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I am curious...what are your symptoms? How did you know "something" was going on when you were dx? ANY information would be helpful! TIA!!

Typically what do you feel like?
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  #2  
March 14th, 2007, 10:54 AM
texasmomof2
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like crap



ok, so that probably wasn't very helpful, LOL

I felt like I had the flu all the time. My body hurt with muscle aches, but I wasn't running a fever. I was always tired-I mean so tired I couldn't get out of bed.

http://www.webmd.com/fibromyalgia/tc...algia-Symptoms

Here's a link from WebMd that's pretty helpful.

Are you having symptoms, honey??
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  #3  
March 14th, 2007, 11:45 AM
~*Dina*~'s Avatar Platinum Supermommy
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I would get this pain deep down inside (in my legs) and I couldnt explain it, but it would get worse when I got cold. The Dr initially thought I had arthritis, but after many xrays no fluid was found in my joints, and like texasmomof2 said, I felt achey, tired. I can fall asleep just fine, but I cant stay asleep. I hope you dont have it.
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  #4  
March 14th, 2007, 04:17 PM
Colee's Avatar Platinum Supermommy
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Quote:
like crap



ok, so that probably wasn't very helpful, LOL

I felt like I had the flu all the time. My body hurt with muscle aches, but I wasn't running a fever. I was always tired-I mean so tired I couldn't get out of bed.

http://www.webmd.com/fibromyalgia/tc...algia-Symptoms

Here's a link from WebMd that's pretty helpful.

Are you having symptoms, honey??[/b]

I'm just not sure I have explained to people(Joe and my Mom) for several years about certain things 'hurting'...like it all started aboout 8-9 yrs ago when my finger nails hurt. it would bother me so bad I would have to clip them as short as they go.

More recently(within the past 3-4 yrs) My skin hurts,my neck,shoulders...some of my back...my HAIR(how strange?!?). This all feel like a deep sunburn...without the sun. Joe tries to rub my shoulders to help it feel better and it makes me shiver...I cant even stand him touching my upper skin when I get like this.

My Grandmother had Fibro...so it wouldnt be a shocker...plus with my already having MS and UC...chances could be.

I told my PCP in the hospital that my skin hurt and he said it was from the prednisone. I disagree with that. I know I have felt this before withOUT being on prednisone.

How can a person be tested for this? And am I correct in understanding nothing can be done to help fibro>?

Thanks for answering so many questions ladies...very helpful!!
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  #5  
March 15th, 2007, 11:47 AM
texasmomof2
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Honey, I'm right there with ya with the hair hurting. People used to think I was crazy when I told them that. But I know EXACTLY what you mean. And no, it's not that *nothing* can be done for fibro, I think it is just so misdiagnosed, that they are just now starting to find thngs that help. I know that the NSAIDS are supposed to be really helpful (like Celebrex, etc) and trigger point injections if you get to where you need them. I get them in my neck to help with my migraines and the fibrom in that area.

I know that my neurologist did some type of trigger point tests where they *poked* certian trigger points to see which ones were sensitive. They do a diagnosis of fibro based on how many were. (or something like that.) So I'm sure your neurologist can do a diagnosis.
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  #6  
March 15th, 2007, 04:57 PM
Colee's Avatar Platinum Supermommy
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Thanks Janetta...I will mention it to my PCP tomorrow. I have follow up appointment from hospital.
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