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Hello girls, I am Sara. I post actively in the September 06 playroom and have a 7 month old daughter. My dh is Warren.
I have ankylosing spondylitis. It is a very rare form of arthritis. It causes great pain in your back, neck and hips. It can also causes fusing of the spine.
I am just look for other moms to talk to and get support. I am have a difficult time with AS (ankylosing spondylitis) right now and can hardly keep up it together for my poor daughter. Dh and I just made the decision to most likely not have anymore children which really upsets me, and I dealing with a lot of pain.
But I won't turn my introduction into a whiney vent lol... I hope to get to know you girls and maybe get some support as well as give some.
Hi Sara and welcome! I'm Janetta, and I have a whole host of auto-immune disorders. My first diagnosis was Lupus, then I developed spondyloarthopathy (very similar to AS), then Graves disease, Sjogrens and fibromyalgia. I think now they considered what I have to be "mixed connective tissue disease" with Lupus still being my primary diagnosis. (I'm a mess-LOL)
I totally understand the issues with the back, neck and hip pain you go through. I have been taking a shot called Enbrel for a while now, and it seems to help quite a bit.
Again, welcome to the forum! I know you will find tons of support here, and the other ladies here are awesome! There is no such thing as TMI, and we all love and care about each other a lot, so feel free to jump on in!!
Dont ever feel like you are turning your post into a vent...we all truly understand. Though we may not all have the same disease/disorder...we all are here together to help each other get through the rough patches in our lives,dealing with being chronically ill.
I'm Nichole,married to Joe and we have two kids...Emily will be 6 in September and Ryan will be 2 next month. Joe and I are done having kids too...that decision was made very soon after Ryan was born. I wish we could have had more...but with my being ill(plus I had PPD) it just isnt wise for us
I was diagnosed with Ulcerative Colitis(UC) back in 2002,when Emily was just one...and then diagnosed with Multiple Sclerosis(MS) just this past year-2006. Seems like you get 1 auto-immune disease and more follow...at least in my and Janetta's case(I'm sure lots more).
Anyhow...welcome,welcome...this place is great for support and like Janetta said...no TMI here.
__________________ Nichole,Mommy to Emily and Ryan
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