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  #1  
June 29th, 2007, 10:08 AM
Stellaluna's Avatar Super Mommy
Join Date: Feb 2006
Posts: 777
Hello everyone!

I saw the intro for this board posted over on the homeschooling board so I thought I'd pop in and introduce myself.

My name is Jenn, I'm 31 years old, married to a great guy and we have a 5 year old son together.

I was diagnosed with Hashimoto's Thyroiditis shortly after the birth of my son. Autoimmune thyroid disorders run in both sides of my family..my mom has Hashimoto's, my Dad's mom had Graves and all my Dad's brothers and sisters are currently taking Synthroid.

I was aware that the disease was a possibility before my pregnancy due to the high instance in my family and I knew that due to the immune system "rebound" following pregnancy I should be on the look out for symptoms. Sure enough, shortly after I gave birth to my son I began noticing symptoms of hyperthyroidism (many times in the beginning stages of Hashimoto's the thyroid attempts to "fight back" producing hyperthyroid symptoms). My heart was racing all the time, I was having palpitations, I was losing weight too quickly, having feelings of high anxiety, fatigue and overall sickness. I went to my primary, told him my symptoms, my family's history of thyroid disesase and requested a blood test. He looked at me like I was crazy and tried to assure me that it was all just "postpartum issues" . I insisted on the test anyway and sure enough it came back that I was hyperthyroid. Despite my family history he still insisted that it was all postpartum. At the time I wasn't aware that there was a simple blood test he could run to check for anti-thyroid antibodies that would diagnose me with an autoimmune thyroid disorder so that we could begin treatment. I went through the next couple of months feeling awful..but patiently waiting it out as the doctor had assured me it would go away.

One day, about 3 months later, I noticed a large lump in my throat. I was referred to a head and neck surgeon. An MRI showed that my thyroid was grossly enlarged and had grown into my chest where it was wrapping around my trachea. A blood test revealed that my thyroid levels were now veeeerrrrryyyy underactive (normal range is .3 - 3.0, the lower the number the more hyperactive, the higher the number the more hypoactive). My levels at the time were over 100. The blood test also showed high levels of anti-thyroid antibodies leading to the official diagnosis of Hashimoto's. I started on Synthroid, began to feel better and thankfully my thyroid shrank back down to normal size.

5 years later and it's still a battle. Your body normally fluctuates in the amount of thyroid hormone it produces but since I take one dose it's a constant battle of adjusting the dosage. Since your thyroid affects almost all the systems in your body when it's off almost everything is affected.

Part of the reason I've hesitated to have another baby is that I know there I'll have to be extra vigilant in regards to my dosage level during the pregnancy (your body naturally produces more thyroid homone during a pregnancy, especially in the first few months before the baby's thyroid has formed on it's own). I also worry about a second autoimmune disease acting up after the pregnancy as well...and I have my hands full with this one, I don't know how I'd handle a second..lol!

Anyway, sorry for the ramble, but that's my intro! I look forward to hanging around here and getting to know you all!
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<span style="font-family:Comic Sans MS">Homeschooling Mom to Sam (3-21-02)

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  #2  
June 29th, 2007, 10:19 AM
Colee's Avatar Platinum Supermommy
Join Date: Apr 2005
Location: Northeastern Ohio
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Hi Jenn,I'm Nichole Since you saw the intro...you kinda already know me. I'm really glad you came on over...We are a small,but wonderful group of ladies. You'll love it here!!

Your Doctor sounds so much like some of the Dr's I have seen over the years. I am glad you kept insisting on the blood test! I truly believe that a person knows their body better then their Dr's...Just have to listen! I have a question for you...I have been having problems with my thyroid. My Dr did bloodwork and says that I am borderline and to retest in September. You mention a large lump in your throat and that it was your thyroid enlarged. I have had a lump about the size of a fifty cent piece(right in between my collarbone-up just a little closer to my throat). I have had it for about 3-4 yrs and I mentioned it to my Dr and he said it was "just some fatty tissue from taking prednisone"...I thought it was strange,but figured he knew better then me. Does this sound like anything similair to what you had in your throat? I wonder if I should make a point in showing him again...especially with my borderline thyroid problem.
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  #3  
June 29th, 2007, 10:31 AM
Stellaluna's Avatar Super Mommy
Join Date: Feb 2006
Posts: 777
Hi Colee, thanks for the warm welcome!

The area you have the lump in is the right area for your thyroid..I'd ask for scan if that's possible, just to be sure.

Also, keep in mind that up until a couple of years ago the normal thyroid range was .3 - 5.0, but was changed recently to .3 - 3.0 and treatment is recommended for levels above 3.0. Most doctors (even some endocrinologists) are unaware of the change and still use the old peramiters so it's always good to ask exactly what your numbers are and keep a log for yourself!
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~Jenn~

<span style="font-family:Comic Sans MS">Homeschooling Mom to Sam (3-21-02)

My Photography Website

My Blog - Pollywog in a Blog</span>
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  #4  
June 29th, 2007, 11:47 AM
the_elmel's Avatar Platinum Supermommy
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Hello Jenn!

Welcome to the board. I'm glad you found us. I am Lauren and have Celiac Disease. I am expecting my first little one in October.

I hope you stick around.
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  #5  
June 29th, 2007, 12:39 PM
Colee's Avatar Platinum Supermommy
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Location: Northeastern Ohio
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Quote:
Hi Colee, thanks for the warm welcome!

The area you have the lump in is the right area for your thyroid..I'd ask for scan if that's possible, just to be sure.

Also, keep in mind that up until a couple of years ago the normal thyroid range was .3 - 5.0, but was changed recently to .3 - 3.0 and treatment is recommended for levels above 3.0. Most doctors (even some endocrinologists) are unaware of the change and still use the old peramiters so it's always good to ask exactly what your numbers are and keep a log for yourself![/b]
Thanks,thats good to know. I will definetly bring this up to my Dr again. What type of scan would they do for that?
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  #6  
June 29th, 2007, 01:23 PM
Mega Super Mommy
Join Date: May 2005
Location: VA
Posts: 4,035
Hi Jenn. I'm Lorna and I'm a 36 year with two boys. 1 is 14 the other will be 2 in October.

I was diagnosed with Graves Disease earlier this year. When they tested me my TSH was .005. I took the radioactive iodine and they tested me last month and my TSH was 80. Currently I'm taking 137 mcg of synthroid. I think she'll be increasing it soon, because I'm not feeling "normal"

I hope you stick around, there are a bunch of great women here. Like Colee said there aren't a lot of us, but darn it we're friendly
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