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Rheumatoid Arthritis


Forum: Autoimmune Diseases and Disorders

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  #1  
March 22nd, 2008, 03:14 PM
::er!ca::'s Avatar Platinum Supermommy
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Just wondering if anyone else has been diagnosed with RA? I need a friend
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  #2  
March 23rd, 2008, 08:30 AM
my2babies9806's Avatar TTC #3!!!!!
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I have RA. My grandmother and mom and aunt also have it. I'm the only one with SLE as well, but then, my grandmother thinks that, based on my symptoms and what I go through, that her mom had it but it was, of course, undiagnosed back then. As for the RA, my grandmother was diagnosed in her 30's, my mom in her 30's, and my aunt and I in our 20's.
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DS born 4/24/98 - 41 weeks - age 11yrs
DD born 9/6/06 - 39 weeks - age 2 1/2 yrs

8 total losses: 7 first trimester & 1 second trimester

TTC #3!!! Wish us luck!!


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  #3  
March 24th, 2008, 06:02 AM
::er!ca::'s Avatar Platinum Supermommy
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I've had the symptoms since I was 18.... but stubborn and thought "Oh it's nothing, I'll just deal with this." Finally went to the doctor and was dx in June 2007 at the age of 22. We became pregnant just a few months later (though my rheumatologist suggested that we had waited a bit longer.... it just wasn't in the "cards" for us, we had a "plan" so to speak as far as kids and age spacing went) and since we became pregnant, he stopped doing more tests and is just trying to treat the symptoms/pain that I currently have. Once I deliver we'll be back full-force trying to get things on track.
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  #4  
March 27th, 2008, 08:33 PM
la_sirena's Avatar Veteran
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Posts: 321
I have Still's Disease which is like a combo SLE and RA.

I have the absolutely crippling arthritis and the SLE symptomatic side as well.

It's certainly not fun and it makes me question whether I'd be able to handle another pregnancy and raising another child.



I think for me the first time I felt 'sick' like this was in junior high. I was given the Mono dx but I must have missed school for 6 or 8 weeks. I was only 14 and had the most awful and crippling joint pain, rash and fever.

At 15 I had a horrible kidney infection that required me to be hospitalized and is where we learned I am allergic to sulpha drugs (that's an SLE thing).

I just never felt 'well' after that. Like I was always tired, run down, had severe anemia and never felt like I did before that.

Once we started ttc I started miscarrying. After each miscarriage I'd get a 'flare' of horrible joint pain, swelling, pleurisy, my kidneys would act up, etc.

It was after our twin loss that it all hit so hard. Even after my c-section with Sophie I had a 'flare' but everyone, and I mean everyone!, told it was pain due to having a c-section. But after 3 D&Cs it all crumpled to nothing.

So, to me, I feel like I've been this way since I was 15. Just with better and worse days.
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*~* Jen ~ Recurrent Miscarrier, Mama to 8 angels)
Mama to: Sophie (3.5) & 2 boy cats (6 & 4)
Our twin girls went to Heaven on March 21st 2007 and I had 3 back to back D&Cs, 2 hemorrhagic episodes & one heck of an autoimmune response.
We will TTC again in May 2010.
In the meantime: I'm studying & balancing the plethora of drugs I take everyday.
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  #5  
March 28th, 2008, 12:43 PM
::er!ca::'s Avatar Platinum Supermommy
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The overall feeling of not feeling well sucks. When DD#1 wakes up in the mornings, it takes me 5-10 minutes to be able to get up out of pain, then another few minutes to stand through the pain, take that awful first step, and hobble down the hall to her room to get her up. I wonder how I'm going to do it with a newborn when she wakes up in the middle of the night for a feeding or diaper change. Newborns won't be as patient as my nearly 3 year old daughter!

I try my hardest to not let it keep me from doing my daily things and stuff with my daughter... but sometimes I have to give into the pain and take a break. I can't even handle standing for 10 minutes to wash the dishes without being in severe pain and needing to sit down for a LONG... I mean LONG break.

Arthritis runs in our family, but I'm the first to be dx with RA.

Since we bacame pregnant so soon after the dx, things were kind of haulted as far as more tests/procedures until the baby was born. I have a lot of problems with my neck and back, hips, knees and ankles. I'm in school for medical assisting, so I understand almost all of the medical terms used in my lab reports... and I look at them from time to time to try to get myself to understand what is going on in my body... but it all gets so overwhelming. I've done so much research on the computer too, my husband thinks it's making me feel worse about the whole situation. I told him I'm not trying to self-diagnose... I know better than that. But I'm just trying to learn as much as possible about what they're telling me.
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  #6  
March 28th, 2008, 04:35 PM
Becca's_Mommy's Avatar Becca's Mommy
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I do not have RA, but I do have a similar disease called Anklyosing Spondylitis it affects mostly your spine and hips, but can also affect your knees, ankles, rib cage and hips. Sorry to hear your are having a hard time! I had AS during my pregnancy as well. What are they giving your for treatment? Maybe when the baby is born you can co-sleep so you don't have to get up out of bed at night. They make day and night bottle warmer/cooler deals if you don't breastfeed. You might look into that.

Hugs.
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  #7  
March 29th, 2008, 02:50 PM
::er!ca::'s Avatar Platinum Supermommy
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We're actually looking into AS as well. I'm trying everything possible to NOT take medication during my pregnancy, I know... I need to keep myself healthy and feeling well... but right now (IMO) it is all about the baby and if I can go un-medicated, I will do so. I only have 10 weeks left... so I'm holding my hopes high! I do have Lidocain patches that I wear from time to time at night, and I have a rx for prednisone but I haven't taken it during pregnancy (took it a couple weeks before conception though).

Although co-sleeping is a nice thought, it isn't an option for us. I wouldn't feel comfortable doing it, and DH and I have a hard enough time sleeping together in the bed as it is, let alone adding a child. Baby will sleep in our room for a few weeks to a couple months in a bassinet, so that will help a bit... but I'll still have to get up out of bed to feed baby.

I go back to my rheumatologist on the 8th of April. This will probably be the last time I see him during my pregnancy, since I am delivering at the beginning of June. I'm going to talk with him about what our next steps are after I deliver. I'm antsy, and I hate the waiting game... I just want answers now! I want an active doctor, not one that sits back and waits.
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  #8  
March 29th, 2008, 03:15 PM
Becca's_Mommy's Avatar Becca's Mommy
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I just PM'd you, but I thought I would add, you might try the bassinets that attach to your bed so it is almost like co-sleeping without losing any room in your bed!
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  #9  
March 29th, 2008, 07:41 PM
::er!ca::'s Avatar Platinum Supermommy
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That's a good suggestion, thanks for bringing that up!
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