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It's been a while since I check in here. Amirah is doing great. Getting big... she weighs 22lbs! Doing great with all her developments, sitting, beginning to get to crawl like positions, beginning to eat via her mouth (just about 5 bites of food a day, but this is huge for her), and is generally a joy. She is also being weaned off her ventilator, and her pulmonologist expects her to be completely vent free by the summer.
Our big news is that we are moving from the NYC area to Austin, TX....in TWO WEEKS! We just found out yesterday that we are going. My husband has been out of work since November and has gotten an AMAZING job in Austin. We thought we would have about a month to get everything together, but they need him soon. Over all we are thrilled to be moving, but there is a TON to do and I will be moving far from my family. But its a exciting adventure for us.
That's really all that's going on for us.
Here is photo of her off the ventilator and on the trach collar...
So glad to hear Amirah is doing well! How exciting that she should be vent free by summer! You will have so much more freedom!! And I am so excited to hear you are moving to Austin because I live in San Antonio! I would LOVE to meet you and that miracle baby of yours someday!! Good luck with the move!