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Joey update


Forum: Christian Parenting

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  #1  
August 30th, 2010, 08:32 PM
docsmomma's Avatar Platinum Supermommy
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We got Joey's pre-transplant testing schedule today. Its a lot, but honestly not as bad as I thought it would be. This is his schedule, please say extra prayers for us on these days...

Wed Sept 1: 8 AM labs, 9 AM bone marrow biopsy under sedation

Wed Sept 8: EKG and Echocardiogram under sedation

Fri Sept 10: 9 AM IV Hydration, 11:30 Kidney test, 12:30 CT scan, 1:00 chest x-ray and bone age test all under sedation

Fri Sept 17: 9:30 AM Brian MRI under sedation

Tue Sept 21: results from all testing, review plan, consent signing, meet the team

Mon Sept 27: Admission, port removal and Hickman broviac placement in AM, conditioning chemo start in afternoon. This is day -10 (I think, I could be wrong)

Oct 7 (I think) Day 0 - new cells arrive and Joey recieves them.

Days +1 through +30 are when he is most susceptible and needs to engraft. And through Day +100 we will be at City of Hope, either inpatient or in campus housing

Also... some extra thoughts for us on these days:

Oct 20... Melanie turns 5 and I won't be able to be here.

Thanksgiving... again won't be here....

Christmas... our very first Christmas apart.



Ladies... I will be honest. I am TERRIFIED that this could be our last month together as a family. I am afraid I will leave City of Hope shattered without my Joey. I know the risks, I know there is a chance we will lose him. I know what we are doing is his best chance, but its also very very risky. I am trusting God, but that fear still is there... that need to create as many memories as possible.

Please pray that I find peace... I am falling apart.
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  #2  
August 30th, 2010, 08:37 PM
~LaurenNoel~'s Avatar Platinum Supermommy
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Bless his little heart. I will praying hard for him and your family.
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

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Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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  #3  
August 31st, 2010, 06:37 AM
esparando para bebé's Avatar Proud Car Seat Technician
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*hugs* Traci. As with all hospitalizations, you can call me any time of the day or night. I need to give you my mom's # too in case you need to talk tomorrow. I will be babysitting Des.
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  #4  
August 31st, 2010, 11:54 AM
kellysheree's Avatar balls to the wall
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Lots and lots of prayers for you all. Stay strong....soon you will be home with Joey and he will be a lot better! Praying for you, Joey, your family and Joeys histio hero. Deep breath.

Woah- so I'm listening to K-Love online as I type this and "Better then a Hallelujah"by Amy Grant is on...."God loves a lullaby In a mothers tears in the dead of night Better than a Hallelujah sometimes.......We pour out our miseries
God just hears a melody Beautiful the mess we are The honest cries of breaking hearts Are better than a Hallelujah"

So let it out. Much love and many prayers sent.
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  #5  
August 31st, 2010, 12:56 PM
NewportMamaBear's Avatar Platinum Supermommy
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Prayers for you and your family.
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  #6  
August 31st, 2010, 06:09 PM
~InHisHands~'s Avatar Platinum Supermommy
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Praying for you...
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  #7  
August 31st, 2010, 08:28 PM
Mattiez's Avatar Mega Super Mommy
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(((HUGS))) and prayers.
Mattiez
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  #8  
September 1st, 2010, 06:40 AM
~~Katrina~~'s Avatar My other car is a TARDIS
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Praying for you and your family.
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