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We got Joey's pre-transplant testing schedule today. Its a lot, but honestly not as bad as I thought it would be. This is his schedule, please say extra prayers for us on these days...
Wed Sept 1: 8 AM labs, 9 AM bone marrow biopsy under sedation
Wed Sept 8: EKG and Echocardiogram under sedation
Fri Sept 10: 9 AM IV Hydration, 11:30 Kidney test, 12:30 CT scan, 1:00 chest x-ray and bone age test all under sedation
Fri Sept 17: 9:30 AM Brian MRI under sedation
Tue Sept 21: results from all testing, review plan, consent signing, meet the team
Mon Sept 27: Admission, port removal and Hickman broviac placement in AM, conditioning chemo start in afternoon. This is day -10 (I think, I could be wrong)
Oct 7 (I think) Day 0 - new cells arrive and Joey recieves them.
Days +1 through +30 are when he is most susceptible and needs to engraft. And through Day +100 we will be at City of Hope, either inpatient or in campus housing
Also... some extra thoughts for us on these days:
Oct 20... Melanie turns 5 and I won't be able to be here.
Thanksgiving... again won't be here....
Christmas... our very first Christmas apart.
Ladies... I will be honest. I am TERRIFIED that this could be our last month together as a family. I am afraid I will leave City of Hope shattered without my Joey. I know the risks, I know there is a chance we will lose him. I know what we are doing is his best chance, but its also very very risky. I am trusting God, but that fear still is there... that need to create as many memories as possible.
Please pray that I find peace... I am falling apart.
Lots and lots of prayers for you all. Stay strong....soon you will be home with Joey and he will be a lot better! Praying for you, Joey, your family and Joeys histio hero. Deep breath.
Woah- so I'm listening to K-Love online as I type this and "Better then a Hallelujah"by Amy Grant is on...."God loves a lullaby In a mothers tears in the dead of night Better than a Hallelujah sometimes.......We pour out our miseries
God just hears a melody Beautiful the mess we are The honest cries of breaking hearts Are better than a Hallelujah"