We pride ourselves on having the friendliest
and most welcoming forums for moms and moms to be! Please take a moment
for free so you can be a part of our growing community of mothers.
If you have any problems registering please drop an email to email@example.com.
Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!
Thanks Augie for updating during huge scare. I was so terrified Joey was relapsing again that at times I couldn't breathe for the fear of what we were facing.
I got GOOD news today... The nurses who did the water deprivation test did not do the samples accurately AT ALL. Which means the test results were WRONG. Joey does NOT have diabetes Insipidus. They thoguht he did, gave him a trial dose of the drug to treat it and he showed no response. So it made me question the diagnosis and ask for a repeat test, done accurately this time. We got the repeat test and results were perfect! The endo told me this morning it is not DI. he is drinking because of stress and boredom (lets face it, same few toys for 6 weeks... BORING)
His GVHD is grade III skin and liver resolved. So we started a new drug to treat it, which is given in ONLY 2 doses... he had first dose Tuesday and will have the next one Friday.
We are trying to get him home by thanksgiving... but no certainty on that one.
And we have arranged with CHOC hospital for emergency follow up care if something happens when we are home. And after CoH discharges him from their care fully (not until January) we will return to CHOC only because he needs transplant care, not standard onc care...
Wonderful wonderful news on the DI tests being wrong. Will be praying as he gets the PET scans that they come out Histio free!!
Praying and believing with you that Joey will be home for Thanksgiving.
Married 8/11/90 ~ Terry Bechor m/c'd 11/26/03, Thomas A. III m/c'd 7/15/04,
Sarah E. born 6/24/05, Tabitha Zipporah m/c'd 4/?/06, Theodore David m/c'd 8/27/06,
Taylor Lynn m/c'd 2/07/07, Benjamin E. born 3/25/08, Catherine A. born 6/03/09