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Joey update 11/11/10


Forum: Christian Parenting

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  #1  
November 11th, 2010, 01:24 PM
docsmomma's Avatar Platinum Supermommy
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Thanks Augie for updating during huge scare. I was so terrified Joey was relapsing again that at times I couldn't breathe for the fear of what we were facing.

I got GOOD news today... The nurses who did the water deprivation test did not do the samples accurately AT ALL. Which means the test results were WRONG. Joey does NOT have diabetes Insipidus. They thoguht he did, gave him a trial dose of the drug to treat it and he showed no response. So it made me question the diagnosis and ask for a repeat test, done accurately this time. We got the repeat test and results were perfect! The endo told me this morning it is not DI. he is drinking because of stress and boredom (lets face it, same few toys for 6 weeks... BORING)

His GVHD is grade III skin and liver resolved. So we started a new drug to treat it, which is given in ONLY 2 doses... he had first dose Tuesday and will have the next one Friday.

We are trying to get him home by thanksgiving... but no certainty on that one.

And we have arranged with CHOC hospital for emergency follow up care if something happens when we are home. And after CoH discharges him from their care fully (not until January) we will return to CHOC only because he needs transplant care, not standard onc care...
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  #2  
November 11th, 2010, 04:48 PM
OurSweetLabs's Avatar I LOVE My Boys!!
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I am so so thankful you got GREAT news !!

Still Praying
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  #3  
November 11th, 2010, 05:18 PM
kellysheree's Avatar balls to the wall
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Praising God for the good news- continued prayers for Joey being home for Thanksgiving and continued recovery.
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  #4  
November 11th, 2010, 06:07 PM
~~Katrina~~'s Avatar My other car is a TARDIS
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That's great news. Praying everything goes smoothly from here on out and that your family is all home together soon.
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  #5  
November 11th, 2010, 06:31 PM
Mami's Avatar Christian Parent
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Thats great news. Lets hope he can go home for Thanksgiving. Still praying...
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  #6  
November 11th, 2010, 08:53 PM
DawnN's Avatar Mega Super Mommy
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Wonderful wonderful news on the DI tests being wrong. Will be praying as he gets the PET scans that they come out Histio free!!

Praying and believing with you that Joey will be home for Thanksgiving.
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  #7  
November 11th, 2010, 11:41 PM
NewportMamaBear's Avatar Platinum Supermommy
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Praises for the good news. Continued prayer for more good news in the weeks/months/years to come
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  #8  
November 12th, 2010, 06:26 AM
Mattiez's Avatar Mega Super Mommy
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Great news. Thank you Lord
Mattiez
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  #9  
November 16th, 2010, 07:48 AM
~InHisHands~'s Avatar Platinum Supermommy
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Oh wow... praise the Lord for good news!
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