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There were times I wondered if we would ever see this day... there were days I bawled my eyes out and didn't think I'd ever catch the dragonfly I have been chasing for nearly 2 years.
This morning I woke up next to my husband and my son. We are home, Joey is histio free. Could there be anything sweeter?
I am beyond grateful....
And its hard to know where to begin.
I will start by saying we got a card from his donor on Tuesday. The card told us she has been blessed by her truly selfless gift, the gift of life for a little boy whom she has never met, my Super Joey. And the request to stay in touch. How can I not? She is our hero, our angel on earth, and forever I will consider her a part of our family. Her marrow saved my son. The card also told us she prays for our family every day. She has already done SOOO much and still, she prayers for us every day. She is truly selfless, with a heart of gold.
I am grateful to every person who has helped carry us through this battle. To all of you. You have supported us, cried with us, celebrated with us, and not once did anyone give up. You have listened to my rants, my tears, my hopes, my fears. You have prayed for this day, and let us know you care. It means more than I can ever say.
I am grateful to the doctors who have treated Joey, at all 3 hospitals. To CHOC for diagnosing him and treating him in the beginning. To Millers for giving us 6 months of remission, and trying "new" things to help get him to transplant. And to CoH for getting us through transplant.
I am grateful for my family. My mom who has helped with childcare and meals more often than even I know. My husband who has managed to continue working, taking care of my older kids, and keeping the house running. My David who not once gave up and has understood why mom can't be here. My Melanie who would get mad if I even suggested I come home for a night without her knowing someone was staying with Joey that night. My Joey, who never gave up, never stopped fighting, and nearly always had a smile on his face and a laugh...
Life lessons... I have learned so much from this journey. The biggest lesson I want to say to all of you...
Never take a single moment for granted. Enjoy the cuddles, read an extra book at bedtime, let bathtime last a few minutes longer, eat dinner as a family. Enjoy that trip to the park, even if you dread park days. Listen to the stories your kids come up with, or the story about what happened at school. These little things are so precious, never ever taken them for granted.
We are grateful to be home right now. He is home on 12 meds, at least 3 of them are to help combat the itchiness caused by the GVHD rash that covers the majority of his body. It is improved, but will take time to resolve.
But what matters most of all is being home, as a family, and on the road to complete and total health.
(((Traci)))) *crying here also*
Words fail me. I'm just so truly truly happy for you and your family. Super Joey has been an inspiration to us all.
Married 8/11/90 ~ Terry Bechor m/c'd 11/26/03, Thomas A. III m/c'd 7/15/04,
Sarah E. born 6/24/05, Tabitha Zipporah m/c'd 4/?/06, Theodore David m/c'd 8/27/06,
Taylor Lynn m/c'd 2/07/07, Benjamin E. born 3/25/08, Catherine A. born 6/03/09