Update on Connor (x-posted) update post 1

karenwalter · #1 April 25th, 2010, 07:49 PM

So Friday we had a pedi appointment for a check on Connor's reflux/weight. He was 3 months old on Thursday.

At his 2 month appointment he was 10 lbs, 2oz. and 24 inches long. Well, Friday he was only 10 lbs 14 oz

a whole month later!! He is continuing to drop further off the charts.

He's still spitting up a ton, but not screaming with it like he used to. My pedi was very concerned about the spitting up and needed to check his labs because she was concerned about electrolytes. So, we got sent over to the hospital for tests.

Connor got an IV which was horrible to watch him scream in pain from (and they had to stick him twice). Then he got an ultrasound to check for pyloric stenosis which was negative. Finally his labs came back with elevated liver enzymes so he got more blood drawn and sent for another ultrasound this time for his gallbladder and liver.

The ultrasounds were fine and we finally got to go home. But, they still don't know what is going on to make his liver enzymes elevated. We are getting referred to a pedi GI doc and I have to go back to my pedi tomorrow to discuss what to do from here.

We are going to switch his meds around and start him on rice cereal to help with weight gain/spitting up. And hopefully I will get some more answers tomorrow.

So, 8 hours later and we finally got released, then we drove to go visit my in laws and see the family which we already had planned. So we spent the weekend there. I am exhausted now! But I'm glad the pedi said to go because DH's grandmother hadn't seen Connor yet and this was going to be our first trip up there (about a 4 hour drive)

I am so sad that Connor had to get put through all those tests and I'm sure there's more to come

And on top of all that, I have to go back to work on Wednesday.....

Hopefully this made sense. I'm very tired as we just got home. I'll update tomorrow when I find out more.

Update 4/26: We saw another doc in the practice this morning. Connor lost another ounce since Friday. We are being referred to a pediatric metabolic specialist. He thinks that Connor is getting enough to eat, but for some reason cannot absorb it. He is going to work on finding the specialist (since they're not very common) and then we can get an appointment. I am so upset....I just want my little boy to be okay

jbhonea · #2 April 26th, 2010, 09:16 AM

Aww. I hope the Dr.'s can figure it out. And hopefully it won't take a punch of needles. Please keep us updated. Our babies are around the same age.

CandaceDianne · #3 April 26th, 2010, 10:05 AM

Im really sorry you have so many unanswered questions!! I know its probably more torture for you to watch him go through this, but I hope all of this will result in an easy diagnosis that can be remedied quickly and easily! KUP!!

amazing_love · #4 April 26th, 2010, 12:23 PM

Poor little guy

I hope the doctors figure out what's going on soon!

denalibear · #5 April 26th, 2010, 06:03 PM

Oh poor Conner...I really hope the specialist can give y'all some answers really quick.

MommaLee · #6 April 26th, 2010, 06:33 PM

I'll be thinking about you all. I hope they can figure it all out. HUGS!

Oreobaby · #7 April 26th, 2010, 07:23 PM

I am so so sorry Karen...I will be keeping you DH and little Conner in my T & P!! I hope he starts to gain some serious weight soon!! and that everything is ok.

*Mommy2Camden* · #8 April 26th, 2010, 08:05 PM

I'm SO sorry you are having to go through this. I really hope they can figure things out soon! Please keep us posted!

fromustobaby · #9 April 26th, 2010, 08:46 PM

Oh poor baby!! That sounds so scary to go through...I hope that they can figure out what is wrong and get it fixed quickly so that he can start gaining weight again...

One question, does he have regular dirty diapers?
Kaiden is a spit up champ also (like 30-40 times a day)...we've already gotten the U/S for pyloric stenosis at 4 weeks cause he spit up so much (it was negative)...its so frustrating to not be able to do anything to get him to spit up less

SassyMama · #10 April 26th, 2010, 10:06 PM

Awww I hope his tests come back fine!

tiffanys · #11 April 27th, 2010, 05:27 AM

I'm so sorry you are having to go through all of this hun! My thoughts and prayers are with you and your little boy! I pray that they can find a dr. very quickly and that everything will be just fine!

CandaceDianne · #12 April 27th, 2010, 05:40 AM

Im sorry you keep getting disappointing news!!!

ca_dawson · #13 April 27th, 2010, 09:07 AM

I'm so sorry you're having to go through this. I hope they find answers soon.

karenwalter · #14 April 27th, 2010, 09:27 AM

Quote:

Originally Posted by fromustobaby

One question, does he have regular dirty diapers?
Kaiden is a spit up champ also (like 30-40 times a day)...we've already gotten the U/S for pyloric stenosis at 4 weeks cause he spit up so much (it was negative)...its so frustrating to not be able to do anything to get him to spit up less

Yes, he still has dirty diapers and plenty of wet ones too. That's why they think it's an absorbtion problem instead of him just not getting enough to eat.

Lyz · #15 April 27th, 2010, 11:44 AM

aww i'm am SO sorry you have to go through all this!! I hope everything is okay with little Connor and they can fix the problem right away! thoughts and prayers mama....

Jodi0804 · #16 April 27th, 2010, 05:25 PM

I'm so sorry you guys are going through this, how scary. What meds have they tried with him for the reflux? Is there a pattern to his spitting up or is it random? Hang in there and KUP!

~* Liss *~ · #17 April 27th, 2010, 07:40 PM

I'm so sorry Karen!

I hope you get answers soon!

Etph007 · #18 April 28th, 2010, 06:30 AM

I'm so sorry. I hope they can find something to fix it soon!

Celry · #19 April 28th, 2010, 06:40 AM

I'm sorry hun. Sam's daughter Ana was not absorbing fats correctly. I think one of the things that tipped them off was how her poop looked. I'm sure you could PM her and ask in case Connor has the same thing. Her screenname is Samspain.