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Mega Super Mommy
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Join Date: Feb 2009
Location: Canada
Posts: 3,523
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Hi Ladies,
We really need your Thoughts and Prayers please!
Yesterday, I got a phone call from our Children's Hospital. Nikolas had the Newborn Screening tests done and one of the tests came back as a screen positive. It doesn't mean that he has it yet - but we have to go on Wednesday to get him checked because he may have Cystic Fibrosis. I have spent a lot of time crying since that phone call yesterday.
Tomorrow morning at 10:30am (EST) we go in for the test. It is called a sweat chloride test. The sweat chloride test will give us information about whether or not Nikolas has CF, or if any additional investigations are indicated. We should have the results by 2:00pm tomorrow.
PLEASE PLEASE send us all the T&P you can!
I will post something when we know.
Thanks so much ladies!!
xoxo
ETA: please don't say anything on facebook.... we havent mentioned to many people. 
*UPDATE*
We want to thank everyone SO much for their T & P and positive thoughts! Today was a long day - but with such wonderful news! Nikolas does NOT have Cystic Fibrosis! He is a carrier of it - he has the one mutated gene - but he does NOT have the disease. DH & I had blood taken for DNA testing to see if one of us or both of use carry the mutated gene. If it is both - Nikolas will be our only child as their would be a 1 in 4 chance that our children could have the disease.
I will be online tomorrow (I hope) and will FINALLY be able to catch up with everyone!
Thanks again SO much for all of your T & P! We believe that all of the positive thoughts and prayers are what helped us today. We feel so lucky!!  to all!
Last edited by ~* Liss *~; June 2nd, 2010 at 06:45 PM.
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Mom to Brady and Hannah
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Join Date: Nov 2007
Location: Rhode Island
Posts: 6,312
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You are in my thoughts and prayers! Hoping for good news tomorrow.
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Platinum Supermommy
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Join Date: Apr 2008
Location: The Land of Infertility
Posts: 16,090
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Oh no- I'll keep everything crossed for you guys and say a special prayer tonight. 
__________________
Thank you brie_91 for this fabulous siggy!!
Our TTC journey: 6 cycles Clomid, lap surgery/ D&C, IUI, 2 x IVF; 33 cycles- BFN.
IVF#1 (March 2010) Transferred two 8-cell grade A (perfect) embies- BFN and heartbroken.
IVF#2/FET#1 (Jan/Feb 2011):Transferred two (7&8 cell) grade A (PERFECT) embies- BFN again.
March 2011- February 2012: On BCP due to endometriosis.
March 2012- taking a few months off of BCP and we are TTC naturally.
We will re-evaluate another IVF w/FET try in 2013.
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Platinum Supermommy
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Join Date: Jan 2009
Location: Delaware
Posts: 5,643
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oh no Liss!! I'll be thinking of you guys!!
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Platinum Supermommy
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Join Date: Sep 2008
Location: Arizona
Posts: 6,046
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Oh no! I'm so sorry to hear that. I hope the test goes well and he doesn't have CF. Keeping you in my thoughts and prayers.
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Katie: mommy to Ty & Em
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Join Date: Mar 2008
Location: Texas
Posts: 12,339
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OH Liss!!!!!!! I will definitely keep you guys in my prayers. I'm so sorry!!
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Thanks Chelsea (Graysmama) for my super cute siggy!!
Have Faith, Expect Miracles
SHHHH!! Don't mention Pregnancy on FB please!! 
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Platinum Supermommy
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Join Date: May 2009
Location: Ireland
Posts: 6,135
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 Oh no sweety I will keep him in my prayers. KUP and hang in there honey....
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Platinum Supermommy
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Join Date: Dec 2008
Posts: 8,211
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I'm so sorry Liss, I cant imagine how scary that must be...really hoping that everything turns out ok...
__________________
THANK YOU Jaidynsmum for my beautiful siggie
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Mega Super Mommy
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Join Date: Feb 2009
Location: Alberta, Canada
Posts: 2,364
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Thinking and praying for great results tomorrow!!
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Platinum Supermommy
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Join Date: Jul 2009
Location: Fort Worth, TX.
Posts: 6,534
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Definitely saying prayers that all is well! I was just doing some reading and it's possible to get a false positive from the initial screening...from kidshealth.org "If a test result comes back abnormal, try not to panic. This does not necessarily mean that your child has the disorder in question. A screening test is not the same as diagnostic test. The initial screening provides only preliminary information that must be followed up with more specific diagnostic testing." So hopefully this was just a fluke and Nikolas is just fine.
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Platinum Supermommy
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Join Date: Apr 2008
Location: St. Louis, MO
Posts: 14,102
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Quote:
Originally Posted by DeepSouthGirl
Definitely saying prayers that all is well! I was just doing some reading and it's possible to get a false positive from the initial screening...from kidshealth.org "If a test result comes back abnormal, try not to panic. This does not necessarily mean that your child has the disorder in question. A screening test is not the same as diagnostic test. The initial screening provides only preliminary information that must be followed up with more specific diagnostic testing." So hopefully this was just a fluke and Nikolas is just fine. |
I saw something along the same lines when I just did some quick research! I will definitely be thinking of him, and you guys. And I hope everything comes back just fine!
__________________
Cycle #1-9 - All Natural....5BFN's, 4BFP's (all ended in miscarriage) Cycle #10-11 - Met with first RE, diagnosed with heterzygeous MTHFR mutation & slightly low SA on all counts. -BFN, Cycle #12 - First IUI+Trigger - BFN, Cycle #13 - BFN Cycle #14-15 - Met with new RE, diagnosed with a blocked right tube that previous RE completely overlooked or didnt care to mention. Soy (120mg) - BFN Cycle #16 - Clomid (100mg) - BFN, Cycle #17 - Clomid (100mg)+Trigger+IUI - BFN Cycle #18 - Acupuncture+Clomid (100mg) - BFN Cycle #19-27 - 2 Soy (160mg) cycles, the rest all natural also 30lbs lost!! - BFN's Cycle #28 - New RE is GREAT! Put on bcp 7/6/11, Lap surgery 8/1/11- Tubal cyst (5cm) found and removed, Uterine Septum removed, and Stage II-III endo removed. Cycle #29 - All Natural - BFN, Cycle #30 - All Natural - BFN, Cycle#31 - All Natural - BFN, DONE TTC FOR NOW
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Platinum Supermommy
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Join Date: Mar 2008
Location: ID
Posts: 12,014
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Oh no, I'm sorry! I hope all comes back okay. I'll be praying for great results sweetie!
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Krista
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Mega Super Mommy
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Join Date: Mar 2009
Posts: 3,579
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Praying for good results for you chica!
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Mega Super Mommy
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Join Date: Oct 2008
Location: Maryland
Posts: 3,469
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Thoughts and prayers coming your way!
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Mega Super Mommy
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Join Date: Apr 2009
Location: Ohio
Posts: 2,579
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Keeping you in my thoughts and prayers Elissa!! I really hope he is alright.
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Thanks GraysMama for my beautiful new siggy!
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Expecting #1- Fisher
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Join Date: May 2008
Posts: 2,271
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I am praying hun!
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Tiffany Blessed Mommy to Fisher and baby#2 Hunter on his way
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Platinum Supermommy
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Join Date: Mar 2009
Location: 100% Native Texan!!
Posts: 8,696
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Oh Liss  I will being praying that everything goes well and the test comes back negative.
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Platinum Supermommy
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Join Date: Mar 2008
Location: Alberta, Canada
Posts: 16,067
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Please let us know how the test goes. We will all be thinking of the three of you tomorrow.
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Missing our Angel since April 11, 2008
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Mega Super Mommy
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Join Date: Aug 2009
Location: Utah
Posts: 2,655
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Keeping my fingers crossed as well I hope it's negative.
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Formerly LyndaSLP
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Join Date: Dec 2008
Location: Long Island, NY
Posts: 6,082
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Lots of thoughts and prayers for good news.
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