[LadyOrion]

Hi, I'm Michele. I'm a 24 year old Mother of three. Malachi 8, Trinity 3 and Anastasiya born Sep 22nd 2006. Both my daughters Trinity and Tasiya have a skin disorder called Epidermolysis Bullosa Simplex, Weber-Cockayne. My girls get blisters on there hands and feet real easy. I am glad we have this forum now and I am looking forward to getting to know other moms who are going through things similar to me and my family.

Epidermolysis Bullosa Simplex Info

[glasscandie]

Nice to meet you! I'm going to post my introduction shortly. I used to live in CA, and I was helping organize a skin disorders support group at Stanford U., and one of the nurses I was working with had a son with EB. I think maybe of a different variety though, because he was in a wheelchair and had to have dressings on his sores, etc.

In any case, nice to know I'm not the only person on JM who has a kid with a skin disorder

[LadyOrion]

Yea, they have a milder type of EB. Some have it so bad they can hardly wear clothes. My girls only get blisters on there hands and feet. They will have a great deal of problems with sports though.

[**Mary**]

My youngest daughter and me have Ezema I have it real bad but she just gets patches of dry skin on her back and stomach and rash around her mouth the doc told me at her 2 yr check-up that she has it.

[LadyOrion]

My youngest daughter and me have Ezema I have it real bad but she just gets patches of dry skin on her back and stomach and rash around her mouth the doc told me at her 2 yr check-up that she has it.[/b]

Hi! Welcome! Yeah I get mild eczema flare ups once in a while. My doctor gave me a steroid cream. Works wonders for me but I heard doctors don't like giving steroid cream to small children.