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  #1  
May 30th, 2007, 01:52 PM
LadyTkachenko's Avatar *~GreenTeamFeb2015~*
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Hi, I'm Michele. I'm a 24 year old Mother of three. Malachi 8, Trinity 3 and Anastasiya born Sep 22nd 2006. Both my daughters Trinity and Tasiya have a skin disorder called Epidermolysis Bullosa Simplex, Weber-Cockayne. My girls get blisters on there hands and feet real easy. I am glad we have this forum now and I am looking forward to getting to know other moms who are going through things similar to me and my family.

Epidermolysis Bullosa Simplex Info
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  #2  
May 30th, 2007, 06:22 PM
glasscandie's Avatar What I make is what I am
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Nice to meet you! I'm going to post my introduction shortly. I used to live in CA, and I was helping organize a skin disorders support group at Stanford U., and one of the nurses I was working with had a son with EB. I think maybe of a different variety though, because he was in a wheelchair and had to have dressings on his sores, etc.

In any case, nice to know I'm not the only person on JM who has a kid with a skin disorder
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  #3  
May 30th, 2007, 06:31 PM
LadyTkachenko's Avatar *~GreenTeamFeb2015~*
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Yea, they have a milder type of EB. Some have it so bad they can hardly wear clothes. My girls only get blisters on there hands and feet. They will have a great deal of problems with sports though.
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  #4  
June 13th, 2007, 05:00 PM
**Mary**'s Avatar mom to Tabby,Kk,Emi & Jay
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My youngest daughter and me have Ezema I have it real bad but she just gets patches of dry skin on her back and stomach and rash around her mouth the doc told me at her 2 yr check-up that she has it.
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  #5  
June 13th, 2007, 05:26 PM
LadyTkachenko's Avatar *~GreenTeamFeb2015~*
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Quote:
My youngest daughter and me have Ezema I have it real bad but she just gets patches of dry skin on her back and stomach and rash around her mouth the doc told me at her 2 yr check-up that she has it.[/b]

Hi! Welcome! Yeah I get mild eczema flare ups once in a while. My doctor gave me a steroid cream. Works wonders for me but I heard doctors don't like giving steroid cream to small children.
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