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Good luck with that! Who are you going to see? FIRST (the Foundation for Ichthyosis and Related Skin Types) has a list of really great derms. all across the U.S., if you want to check it out, the link's in my siggy. It's primarily doc's who've seen cases of ichthyosis, but I'm sure if they've treated ich., then they've treated EB.
Goodluck with the appointment though! I always get apprehensive, because a good derm. can mean a world of difference, and a bad derm. can mean a lot of obstacles! We saw Julia's new derm. in April out of Johns Hopkins (we're military, so we've been moving around since she was born) and he was awesome!