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He was diagnosed with Aspberger's today. It doesn't surprise me at all... dh & I have always suspected it. The neurologist was absolutely blown away by his cognitive level, which made Ben's delayed social speech pattern stand out even more. Paired with his physical delays, he said it's a classic, textbook case. He's being referred to a behavioral psychologist, and he'll have a speech therapy evaluation soon to work on pragmatic language skills.
I'm not sad. I'm relieved! He's not weird because he's homeschooled. He's weird because he's Ben. I knew homeschooling couldn't be the reason, because Daniel's completely the opposite, and both boys have plenty of friends and social situations to learn from.
He had a referral to a neurologist because of his delayed motor skills, not his behavior. He's been seeing therapists and orthopedists since birth. No one ever thought to refer us to neurology until the braces on his ankles last year didn't work. Yesterday was the first available neurology appointment (crazy, huh?!). The neurologist asked several seemingly unrelated questions, observed him, asked more questions, tested some skills, etc., before telling us it was a textbook case of Aspberger's. When I took a closer look at the symptoms, I realized his diagnosis was dead-on. It explains a lot. He's had it since he was born. It's not like it emerged at age 2 the way a lot of autism diagnosises do. It's always been there, which is why we've always known something was "off" about him. He seems so "normal", though most of the time.
I'm not worried about him at all. Going through the list, I realized I also qualify as having Aspberger's. If we hadn't been referred to neurology, we would never have gotten this diagnosis, and we would've continued down the same path we're on. He eventually would've become a productive, well-adjusted member of society. This only gives us a little clearer picture of how he thinks and why he has such quirky behaviors. Now that we know, we can be on the lookout and can adapt.
I can imagine that's a relief, always knowing in the back of your mind that there's something going on, and then finally having a name for it so you can look into it further and do all you can to help him.
I so wish I could get that same kind of relief with the little one.
I've worked with a lot of children with ASD, and for the last two years with a student who is 2E (superior intelligence plus Aspergers) and it really is a fascinating journey! However, it's equally frustrating and emotional. But, the label and diagnosis helps people to shift their mindsets so they can accept and help, at least it did for me!
We are in the process of checking out similar issues with my little boy.
I hope the diagnosis help, Chrystal. There is actually a tell-tale "gait" of an Aspie - scientifically proven. So that could be related to the gross motor issues. Sensory issues could also be part of it.
Liz (30), mum to Mia (5) and Aiden (3)