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Forum: Learning Disabilities and Special Education

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  #1  
January 1st, 2009, 08:43 PM
JessicaBMG07's Avatar Veteran
Join Date: Dec 2008
Location: MI
Posts: 158
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Hello everyone! I am Jessica. I was just searching different places and I found this one and thought I would tell everyone about my little miracle. Her name is Grace and she is 18 months old. She has hydrocephalus(water on the brain), hypothyroidism, and schizencephaly. She has had a total of 9 shunt revisions, and 1 stomach surgery to place in a g-tube. She doesnt have a lot of head control, so she cant sit up. She rolls over occasionally, and she can scoot all over the room when she is on her back. She is the apple of our eye! I have a 5 year old daughter as well that is such a big help! I love watching them together. I was just wondering if anyone here has a child with any similar things? I dont have a lot of other moms i know with children like I have...its good to have someone to talk to!
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  #2  
November 1st, 2009, 11:26 AM
Platinum Supermommy
Join Date: May 2008
Location: Colorado
Posts: 5,581
hello! My name is Laura ! i have been lurking around this board for a while hoping i would find another person who would know what schizencephaly is.. My son has it! you dont know how excited i am! it this has been such a shock to my husband and MY self!.. my youngest son rafe was diagnosed right after i delivered him.. He has type 2 and it is only on one side (his right side) and is pretty small.. the doctors here in Germany had not heard of it and had to do research to find out what it was.. My son had only rolled over a few times and everytime i try to sit him up it only last seconds.. he has to take meds 2 a day for the sezuires.. does your daughter take meds? ok well rafe is up! if you ever want to talk please pm me.. Your girls are adorable!
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