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My name is Jessica and I am a mommy to Madison(5) and Grace(18months). Grace is the one with the disabilities. She has hydrocephalus, hypothyriodism, and schizencaphaly. She has had a total of 9 shunt revisions, and 1 stomach surgery to place in a g-tube as well as the Nissan fundelplycation surgery. She was in the NICU and ICU for a total of 5 months when she was first born. She has to be hospitilzed a lot with pnemonia and upper respiratory infections because she also has asthma.She also has ptosis of the eyelids, so she is unable to open her eyes all of the way. She is unable to sit up or crawl. SHe doesnt have good head support, but she can scoot all over on her back. She is a great joy to us...she smiles and giggles and she knows who her mommmy and daddy and sissy are. I am just looking to talk to some of you wonderful mommies that know what its like to have a special child.