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Do you explain to people?


Forum: Children with Special Needs

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  #1  
January 27th, 2009, 07:01 AM
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If you are around people you don't know, and your LO does something that raises eyebrows, do you explain why?

Like with Alexander, when we would take him for pictures, he won't look at the people when they call his name. They would keep on calling him and calling him, and I would just think "he's not going to look" but I wouldn't say anything. But last week he went to the doctor and the nurse was taking blood and she kept calling him, and I just told her that he doesn't usually respond to his name. Without getting into any details. I really haven't found a way to handle this because not everyone is so educated on what autism is, so to simply say he has autism isn't always a good explanation.

So what is your take on these situations?
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  #2  
January 28th, 2009, 09:32 AM
Ditzzy's Avatar Stupid Lamb;)
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Most people realize she has health issues just by her monitor/wires so we get a variation of "looks". Depending on the look, I will offer info. If she's stridoring (obstructing when breathing) loudly then people will freak out if I don't give info. I've literally gotten told off once for not rushing Ava to the hospital. Umm.......calm down! she's not even blue so this is good for her!

What I can't stand is the rude stares, or the parents that will drag their children far around Ava b/c they think she's contagious. That goes right through me!

edited for spelling
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  #3  
January 28th, 2009, 12:34 PM
~~~Sara~~~'s Avatar Platinum Supermommy
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That is a tough one, I usually do not say anything but if it the situation arises, then I might say something.

I do feel like part of my role as Carter's mom is to educate people. Talk about people not knowing what Autism is, Carter has something called Mowat Wilson Syndrome, even most doctors have never heard of it.

That is a tough one, I usually do not say anything but if it the situation arises, then I might say something.

I do feel like part of my role as Carter's mom is to educate people. Talk about people not knowing what Autism is, Carter has something called Mowat Wilson Syndrome, even most doctors have never heard of it.
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  #4  
February 1st, 2009, 05:20 PM
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Wow, I totally understand what you mean. When you say Autism there are a whole bunch of preconceived misconceptions that go along with it. I could only imagine what happens when you give someone a name of something they have never heard before. If you would like to give us an education, we would be more than willing to listen too!
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  #5  
March 25th, 2009, 09:15 AM
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Most people know my ds's and dd's condition. However your right when you say Autism they look at you like you are from another planet,yet,look how many children are DX with it.
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  #6  
March 25th, 2009, 09:38 AM
quietsong's Avatar Just Another Slacker Mom
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I'll only talk to someone if they come to me and ask - if they are just giving us looks, or talking behind my back, I don't bother with them. When they do come up to me, I focus on his deafness, since that is what they can see with his cochlear implants; all the delays and other details aren't obvious so I don't bother to bring them up.
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