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Forum: Children with Special Needs

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  #1  
April 7th, 2009, 05:11 PM
Ditzzy's Avatar Stupid Lamb;)
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Do you have any medical equipment for you children? G-tube kiddos?

******************

Right now we just have the suction machine, apnea/heart monitor, pulse-ox, and nubulizer with all their supplies. I'm hoping to not need anymore!
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  #2  
April 7th, 2009, 06:36 PM
kittycat's Avatar Platinum Supermommy
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I remember those days (Kyle was on oxygen for 2.5years in home)....

We're running at a minimum these days.
Suction machine (which is worthless for Kyle, IMO)
Zevex Infinity Feeding Pump w/mic-key g-tube and accessories
Nebulizer (just got a new travel one, that I love)
AFO Braces for his legs
We also keep oxygen in the house for emergencies

At school they're using a pressure vest, and we might be adding that and a safety helmet at home.
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  #3  
April 8th, 2009, 08:44 AM
Jasons_Mommy's Avatar I love my little man!!
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We just got rid of all of our medical equipment. He was on a apnea/ heart monitor and he had the GI tubes and pump. it wa the happpiest day of my life to ship them back to the company!
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  #4  
April 8th, 2009, 11:40 AM
Ditzzy's Avatar Stupid Lamb;)
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Quote:
Originally Posted by Jasons_Mommy View Post
We just got rid of all of our medical equipment. He was on a apnea/ heart monitor and he had the GI tubes and pump. it wa the happpiest day of my life to ship them back to the company!
Yay!! That's awesome! I'm so jealous!
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  #5  
April 8th, 2009, 12:43 PM
docsmomma's Avatar Platinum Supermommy
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Don't know if this is really considered medical equipment but supply wise we have childrens face masks, adult face masks, sanitizer, Huber needles for port access (in case we ever have to access at home) with all the access supplies (gloves, alcohol prep, gauze, etc...), EMLA cream, tegaderm patches, gloves (to wear when crushing and mixing chemo meds), an IV pole (as a just in case measure the doc wants us to have it), an IV pump, and a few IV bags.

For Melanie we have a board that she can point to what she is trying to tell us when she can't find the words to tell us.
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  #6  
April 8th, 2009, 01:14 PM
Ditzzy's Avatar Stupid Lamb;)
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Of course that counts! I'm sure you feel like you live in a medical supply closet at times! Those things add up.

I love your siggy, btw...
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  #7  
April 8th, 2009, 01:42 PM
docsmomma's Avatar Platinum Supermommy
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Yea, you should see my sisters house. She has an electric wheelchair, a leg lifter, a 7 drawer tower full of huber needles, syringes, IV meds, cath supplies, another 3 drawer tower full of supplies, at last count 40 meds, PLUS an IV pole, a hospital bed, 21 IV bags a week, all the tubing for that, AFO's and KFO's for PT, and stuff I can't even remember. If I ever forget to order something I know she has it...
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  #8  
April 9th, 2009, 07:28 AM
~~~Sara~~~'s Avatar Platinum Supermommy
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I am thankful we do not need any at this time. Carter's disability mainly affects his brain and muscle tone. Lots of his with his syndrome do have a G-tube, but we've been really lucky there too.
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  #9  
April 9th, 2009, 08:56 AM
iamkc's Avatar Platinum Supermommy
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We're working on getting an apnea monitor, but what we have for now:
Oxygen (large and travel)
Pulse oximeter
Feeding pump
Nebulizer
More syringes than I can count
Extension tubing, extra Mic-key buttons, various cleaning accessories
Special seats, baby stuff we've modified on our own
Meds and supplies and formulas stacked everywhere
Breast pump with SOOOO many of those teeny storage bottles, special nipples, attachments, cold packs, measuring devices (everything has to be precise for Milo!)
Glucose monitor and all the supplies
May also get suction soon
All the supplies for growth hormone therapy (needles, swabs, extra caps, sharps box, cooler, cold packs, and more
And more and more and more stuff. We have a small nursery room off of our room that's PACKED with everything. Not even including the regular baby stuff, like clothes, diapers, blankets, etc! The crib and pack-n-play are even in our room! JUST supplies and equipment in the nursery! I feel like we could help almost anyone in an emergency.
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  #10  
April 9th, 2009, 07:43 PM
kittycat's Avatar Platinum Supermommy
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Quote:
Originally Posted by Jasons_Mommy View Post
We just got rid of all of our medical equipment. He was on a apnea/ heart monitor and he had the GI tubes and pump. it wa the happpiest day of my life to ship them back to the company!
What a great day that was. I hope you had a big celebration.

Quote:
Originally Posted by iamkc View Post
We're working on getting an apnea monitor, but what we have for now:
I hated the apena monitor because it false alarmed so much. If you have a choice, request the gel pads - the standard ones with that chest wrap would just get sweaty then lose the contact signal.
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  #11  
April 10th, 2009, 05:37 AM
Ditzzy's Avatar Stupid Lamb;)
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We use snap electrodes (gel back) and get many less false alarms. When we used the belt, we'd get lead alarms every time she moved and false alarms a lot.



Ava HATES the suction machine. I hate using it.
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  #12  
April 10th, 2009, 06:06 AM
quietsong's Avatar Just Another Slacker Mom
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We're another lucky one that doesn't need a whole lot... Danny's challenges are all in his head, LOL. He does have his cochlear implants, which our insurance company considers durable medical equipment, but they aren't what most would traditionally consider medical. They are also debating getting his foot braces, but we haven't gotten there yet. Everything else (g-tube, monitors, PICC/IVs, oxygen, etc) was done in the hospital and didn't have to come home with him.
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