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Forum: Children with Special Needs

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  #1  
April 8th, 2009, 08:23 AM
Jasons_Mommy's Avatar I love my little man!!
Join Date: Feb 2008
Location: philadelphia
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Well my name is Kristyn and I have 11month old son Jason. he was born 3 months premature which left us with many hospital stays, numerous doctors appointments and a ton of "extra needed care".


I posted here a while back, and im really not sure why I stoped. But i hope to get back to posting on this board and getting to know you guys.

I hope its ok to join ypu ladies, and feel free to ask any questions!!
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  #2  
April 8th, 2009, 09:00 AM
quietsong's Avatar Just Another Slacker Mom
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Location: Missouri
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Welcome to the board! Jason is an absolute cutie.
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  #3  
April 8th, 2009, 09:14 AM
Jasons_Mommy's Avatar I love my little man!!
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Thank you!! reading the other post, I guess I should elaborate on our situation

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So as I said Jason was born 3 months early, he was 3lbs 13oz,big for being so early. but he was very under developed. He had a easy road in the NICU he didnt have any issues what so ever, he honestly was their to grow. About a week before he was discharged they did routine testing for premiees which they found a hemerige in his brain, eye prematurities, he was also born with club feet. Im goign to say 3 days before we were discharged He started having issues eating. he was unable to suck swallow and breath at the same time. But we were still dischaged as they said but with a apnea monitor.

When got home we though everything was great! Jason stoped breathing numerous time nto only when he was eating, it was all the time( he would turn gray) so before we knew it he was admited to the childens hospital. During this stay he came down with menegitis They said the hemerige is causing serizers.

So today we are in PT for his clubbed feet.
Following up with the Neuro often for seziers.
we see the devepmental peds Monthly.
and the only answers we get are that, time will make a world of differnce.

So yeah. i tend to ramble so I tried to stop myself lol
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  #4  
April 8th, 2009, 11:38 AM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
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Wow, I hate it when I hear of other babies having breathing problems. I also hate it when we get no answers. I know it's so hard to wait. ((Hugs)) to you, hon!

Jason is a cutie!!
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  #5  
April 9th, 2009, 07:37 AM
~~~Sara~~~'s Avatar Platinum Supermommy
Join Date: Apr 2007
Location: So. California
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Hi Kristyn, Nice to meet you. Jason sure is a cutie.
I hope you get some answers on the breathing, that is so scary.
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  #6  
April 9th, 2009, 08:31 AM
iamkc's Avatar Platinum Supermommy
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Location: Montana
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Welcome back! Jason is ADORABLE!

I'm so sorry that you're having trouble with his breathing and more! I'm surprised that they would have let him go with those issues, especially if he developed problems eating. I'm so glad that he's under a watchful eye now. He looks like he's doing great, so keep it up! Good luck to you!
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